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My Spoonie Sisters - Podcast

My Spoonie Sisters

Welcome to My Spoonie Sisters! If you're wondering what a "Spoonie" is, it’s a term lovingly embraced by those living with chronic illnesses, based on the Spoon Theory. It’s all about managing our limited energy (or “spoons”) while navigating life’s challenges.

Each week, join us to hear from your "Spoonie Sisters" host, co-hosts, and our inspiring special guests as we share real-life stories, tips, and encouragement. Whether you're here to learn, connect, or feel less alone, you’ll find a supportive space filled with understanding, laughter, and strength. Let’s journey through chronic illness together!

Tune in and join the sisterhood!

All guests featured or mentioned in this podcast will be listed for your convenience. Don't forget to rate and subscribe to My Spoonie Sisters and follow @MySpoonieSisters on Instagram for updates on new episodes and more. If you have a story to share or want to be featured on My Spoonie Sisters, please email [email protected]. We eagerly look forward to speaking and hearing from all our Spoonies!

Disclaimer: While we are not doctors or healthcare Practitioners, we want to assure you that this podcast is a credible source of information. It's based on our guests' personal experiences and the strategies we've found effective for ourselves. However, everyone's body is unique, and what works for one person may not work for another. If you have any health-related questions, it's always best to consult your Primary Doctor or Rheumatologist.

Remember, our goal at My Spoonie Sisters is to connect people and provide them with the support and tools they need to live better lives.

Medicine Personal Development Health & Fitness Mindfulness Health Wellness Mental Health
Update frequency
every 6 days
Average duration
37 minutes
Episodes
149
Years Active
2022 - 2025
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Epilepsy Beyond the Ordinary

Epilepsy Beyond the Ordinary

What happens when ordinary deja vu becomes something far more complex? In honor of Epilepsy Awareness Day, join us as we uncover Emma's extraordinary journey with epilepsy, a condition she was unexpe…

00:51:44  |   Mon 24 Mar 2025
Rheum Champions Tell All ACR 2024

Rheum Champions Tell All ACR 2024

Uncover the power of advocacy and community in rheumatology as we welcome our empowering guests, Jennifer Weaver and Cheryl Crow. Jennifer, a dedicated patient leader, and Cheryl, an occupational the…

00:37:53  |   Mon 17 Mar 2025
Guava Your App to Health Tracking

Guava Your App to Health Tracking

Have you ever felt unheard or dismissed in a doctor's office? Join us as we navigate through the deeply personal health journeys of Isabel and Emily, part of the founding team of Guava Health, who sh…

00:41:48  |   Mon 10 Mar 2025
The Silent Struggle: Endometriosis Revealed

The Silent Struggle: Endometriosis Revealed

Join us for a heartfelt and enlightening conversation tackling one of women's health's often-overlooked issues: endometriosis. Through the eyes of three women who bravely share their personal narrati…

00:34:12  |   Mon 03 Mar 2025
A Mother's Advocacy in the Face of Linspad Syndrome

A Mother's Advocacy in the Face of Linspad Syndrome

Kim, a passionate advocate and mother, shares her incredible journey of adopting two daughters, one of whom faces the challenges of an ultra-rare brain condition known as Linspad syndrome. Through pe…

00:50:20  |   Fri 28 Feb 2025
Battling Cushing's: Jewel’s Journey

Battling Cushing's: Jewel’s Journey

What happens when a determined spirit meets a daunting diagnosis? Join us as we hear from Jewel Dukes, who courageously shares her battle with Cushing's disease. Discover the emotional rollercoaster …

00:30:16  |   Sun 23 Feb 2025
Embracing ADHD: From Harlem Globetrotter to Empowering Entrepreneur

Embracing ADHD: From Harlem Globetrotter to Empowering Entrepreneur

Discover how former Harlem Globetrotters athletic trainer turned business coach, Michael Dickey, unravels his personal journey with ADHD—a revelation sparked by his son's experiences. Despite initial…

00:43:59  |   Mon 17 Feb 2025
Stacey a Voice Behind Rare Patient Voice

Stacey a Voice Behind Rare Patient Voice

From the heart-wrenching journey of a mother's advocacy to the personal battles with chronic illness, Stacey Haynes's story promises to move and inspire you. We sat down with Stacey, a leading voice …

00:33:48  |   Mon 10 Feb 2025
Elevator Pitches from your Spoonie Sisters

Elevator Pitches from your Spoonie Sisters

Crafting the perfect elevator pitch isn't just for business moguls—it's a vital tool for anyone navigating life with a chronic illness. Imagine being able to communicate the essence of your health jo…

00:43:17  |   Fri 07 Feb 2025
EXPOSED: You Can’t Heal When You Hide

EXPOSED: You Can’t Heal When You Hide

*TRIGGER WARNING* violence, sexual abuse, and suicide

Serena's journey is one of extraordinary resilience and transformation. As our guest, she opens up about surviving a traumatic childhood filled w…

00:54:41  |   Mon 03 Feb 2025
Spoonie Chats

Spoonie Chats

Ever wondered how innovative tools like trainer chopsticks can transform your daily life with a chronic illness? Join us, your hosts Jen, Ali and Andi, as we share our personal experiences navigating…

00:25:16  |   Fri 31 Jan 2025
Recognize Me

Recognize Me

Imagine facing a medical system that dismisses your symptoms and undermines your experiences. Our guest and dedicated advocate for patient empowerment, Anneke, reveals how she tackled this daunting c…

00:47:11  |   Mon 27 Jan 2025
Laughing Through Life's Quirks: From Public Spaces to Strip Club Stories

Laughing Through Life's Quirks: From Public Spaces to Strip Club Stories

What gives you the ICK? Ever been trapped in an empty lobby, only to have someone sit right next to you? You're not alone! Join us as we laugh through the relatable quirks of public spaces that drive…

00:36:33  |   Fri 24 Jan 2025
Navigating Anxiety with Humor and Self-Care

Navigating Anxiety with Humor and Self-Care

Transform your approach to anxiety and personal growth with insights from Andi Byers, a decorated Air Force veteran turned holistic wellness practitioner. Andi & Jen dive in on the My Spoonie Sisters…

00:42:14  |   Sun 19 Jan 2025
Exploring New Paths to Healing

Exploring New Paths to Healing

 *Trigger Warning*

What if your lifelong pain was dismissed as mere imagination? Join us as we explore Riane's powerful narrative of self-advocacy and perseverance in the face of medical doubt. As a …

00:55:42  |   Mon 13 Jan 2025
Helen's Roadmap to Thriving Amidst Diagnosis

Helen's Roadmap to Thriving Amidst Diagnosis

What happens when your life takes an unexpected turn, and you're faced with navigating the complexities of a chronic illness far from home? Meet Helen, a determined life coach whose journey through a…

00:31:24  |   Mon 06 Jan 2025
#PlanToBeYourBest with Chronic Pain

#PlanToBeYourBest with Chronic Pain

After years of enduring chronic pain, Rick Cram transformed his life by embracing resilience. His story of overcoming a high school football injury and multiple surgeries will inspire you to rethink …

00:46:26  |   Mon 30 Dec 2024
Breaking Down Barriers to Medication Access

Breaking Down Barriers to Medication Access

Discover how you can manage the financial strain of chronic illnesses with insights from Laura and Jamie of Universal Drugstore, who join us for a candid discussion on medication affordability. We be…

00:24:29  |   Mon 23 Dec 2024
Maggie's Creative Journey with Chronic Illness

Maggie's Creative Journey with Chronic Illness

Maggie Bushway's journey of overcoming brain cancer and navigating life with seizures is nothing short of inspiring. Diagnosed at just seven, she turned her battle into a beacon of hope through story…

00:19:34  |   Mon 16 Dec 2024
Navigating Hydrocephalus: Jeff and Katherine's Story of Hope and Resilience

Navigating Hydrocephalus: Jeff and Katherine's Story of Hope and Resilience

What if you could recognize early signs of health deterioration before it turns into a crisis? Join us in a conversation with the inspiring couple, Jeff and Catherine Pearson, as they share their rem…

00:57:08  |   Mon 09 Dec 2024
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