Welcome to the #1 Hirschsprung's Disease podcast...in the world!!
I provide a look into the remarkable experiences of some of the most inspiring people around this little known condition, that effects every 1 in 5000 people worldwide.
This podcast must not be taken as generic medical advice, but please feel free to enjoy the positive stories and take inspiration from my guests journeys and achievements.
My guests may not all have Hirschsprung's disease and may include people with Crohn's, Colitis or IBD as they show similar effects to Hirschsprung's Disease.
Please enjoy the show!!!
**** Trigger warning - contains abuse ****
Lynn describes her remarkable life as a Hirschsprung's survivor and life-long ostomate, through a very challenging start to becoming one of the leading lig…
A place very close to me and many others, Great Ormond Street Hospital, is one of the world's leading children's hospitals.
I'm joined this week by Head of Membership and Corporate Governance, Paul…
Jazz joins me to talk about the history and importance of Ronald McDonald House Charities, as well as celebrating 35 years here in the UK and 50 years worldwide!
Ronald McDonald House Charities have…
This week we delve into 'Parkers Journey' with Leanne, the wonderful person behind the Instagram account 'parkersjourney08'.
We talk candidly about Leanne's feelings around Parker's initial diagnosi…
Entrepreneur and the host of 'Embrace your bravery' podcast, Robyn Taylor joins me to talk about her daughters experience with Hirschsprung's Disease.
Robyn has been on a quest for answers ever sinc…
Actor and West End star Jamie Birkett chats to me about her son and husbands journey with Hirschsprung's Disease as well as her own personal challenges.
Follow along as Jamie recounts the highs and …
Today on the show we will be discussing a unique set of challenges with Louise about her 12 year old son, Jacob.
We start as we always do, from the beginning, about Jacob's Hirschsprung's diagnosis be…
The founder of 'Samuel's Smiles' joins me to talk about his very rare form of Hirschsprung's Disease as well as his experiences of fatherhood.
In this episode we discuss Sam's own HD story and how t…
In this weeks episode I am joined by new mum, Georgina, as we discuss her son Ffredi and his diagnosis of Hirschsprung's Disease.
Georgina talks through her first 5 months of juggling motherhood and…
Rachel joins me to celebrate 40 episodes of the podcast, as she discusses her unique journey through Hirschsprung's disease and motherhood.
Rachel has been a fantastic advocate for Hirschsprung's as…
3 time Ironman finisher Jodi Longdo joins me to talk about her near 50 year journey through sport and healthcare with Hirschsprung's Disease.
As well as an Ironman, Jodi is also a fully qualified Pa…
In the second part of my interview with Steffy, we are joined by her daughter Samantha as we discuss sporting life with Hirschsprung's Disease.
Samantha reveals her swimming aspirations and the hope…
This week I chat with Ostique COO, (Chief Operating Officer) Toni Schneider about how the business was formed through 3 school friends with a shared passion for helping others.
Around the mid-point …
In what should have probably been episode 1!! Me and my two co-founders, Louisa Shapton and Carla Scaramella, explain Hirschsprung's Disease to you.
I will start by talking about what HD is and the…
In this weeks edition of the podcast Charlotte joins me to talk about a variety of conditions including:- EDS, POTS, MCAS, suspected endo, cPTSD and brain damage related balance issues.
Charlottes up…
A special AMA episode, where I answer your questions that have been sent in over the last couple of weeks. 12 questions will be answered from a variety of people on all manner of different topics.
P…
In the first Mother/Son podcast episode, I am joined by Nicole and Benjamin Perry, Nicole talks about the ups and downs of hospital life as well as the 22 months wait for Benjamin's HD diagnosis.
Ben…
In this weeks episode I am joined by Lauren Wood as she shares her story about life with Hirschsprung's disease as well as how her stoma saved her life.
We talk extensively about Lauren's raising aw…
Endometriosis will be the main topic of discussion for this episode as Rebecca talks to me about her condition and the 10 year wait for a diagnosis!
Rebecca tells her brave story of having to advocat…
A very special episode of the podcast sees actor and TV star, Zoe Colletti, joins me to talk about her life with Hirschsprung's disease as well as her phenomenal acting career.
We start Zoe's story …