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Tom's Hirschsprung's Podcast - Podcast

Tom's Hirschsprung's Podcast

Welcome to the #1 Hirschsprung's Disease podcast...in the world!!

I provide a look into the remarkable experiences of some of the most inspiring people around this little known condition, that effects every 1 in 5000 people worldwide.

This podcast must not be taken as generic medical advice, but please feel free to enjoy the positive stories and take inspiration from my guests journeys and achievements.

My guests may not all have Hirschsprung's disease and may include people with Crohn's, Colitis or IBD as they show similar effects to Hirschsprung's Disease.

Please enjoy the show!!!

Personal Journals Society & Culture
Update frequency
every 7 days
Average duration
42 minutes
Episodes
92
Years Active
2024 - 2025
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Episode 49 - With Lynn Wolfson

Episode 49 - With Lynn Wolfson

**** Trigger warning - contains abuse ****


Lynn describes her remarkable life as a Hirschsprung's survivor and life-long ostomate, through a very challenging start to becoming one of the leading lig…

00:44:50  |   Thu 12 Dec 2024
Episode 48 - With Paul Balson from Great Ormond Street Hospital

Episode 48 - With Paul Balson from Great Ormond Street Hospital

A place very close to me and many others, Great Ormond Street Hospital, is one of the world's leading children's hospitals.


I'm joined this week by Head of Membership and Corporate Governance, Paul…

00:29:24  |   Thu 05 Dec 2024
Episode 47 - With Jazz Hind from Ronald McDonald House Charities

Episode 47 - With Jazz Hind from Ronald McDonald House Charities

Jazz joins me to talk about the history and importance of Ronald McDonald House Charities, as well as celebrating 35 years here in the UK and 50 years worldwide!


Ronald McDonald House Charities have…

00:41:09  |   Thu 28 Nov 2024
Episode 46 - With Leanne Constable

Episode 46 - With Leanne Constable

This week we delve into 'Parkers Journey' with Leanne, the wonderful person behind the Instagram account 'parkersjourney08'.


We talk candidly about Leanne's feelings around Parker's initial diagnosi…

00:43:04  |   Thu 21 Nov 2024
Episode 45 - With Robyn Taylor

Episode 45 - With Robyn Taylor

Entrepreneur and the host of 'Embrace your bravery' podcast, Robyn Taylor joins me to talk about her daughters experience with Hirschsprung's Disease.


Robyn has been on a quest for answers ever sinc…

00:40:48  |   Thu 14 Nov 2024
Episode 44 - With Jamie Birkett

Episode 44 - With Jamie Birkett

Actor and West End star Jamie Birkett chats to me about her son and husbands journey with Hirschsprung's Disease as well as her own personal challenges.


Follow along as Jamie recounts the highs and …

00:43:27  |   Thu 07 Nov 2024
Episode 43 - With Louise

Episode 43 - With Louise

Today on the show we will be discussing a unique set of challenges with Louise about her 12 year old son, Jacob.


We start as we always do, from the beginning, about Jacob's Hirschsprung's diagnosis be…

00:47:51  |   Thu 31 Oct 2024
Episode 42 - With Samuel Bell

Episode 42 - With Samuel Bell

The founder of 'Samuel's Smiles' joins me to talk about his very rare form of Hirschsprung's Disease as well as his experiences of fatherhood.


In this episode we discuss Sam's own HD story and how t…

00:49:55  |   Thu 24 Oct 2024
Episode 41 - With Georgina Merckel

Episode 41 - With Georgina Merckel

In this weeks episode I am joined by new mum, Georgina, as we discuss her son Ffredi and his diagnosis of Hirschsprung's Disease.


Georgina talks through her first 5 months of juggling motherhood and…

00:44:51  |   Thu 17 Oct 2024
Episode 40 - With Rachel (@gutsy.mum)

Episode 40 - With Rachel (@gutsy.mum)

Rachel joins me to celebrate 40 episodes of the podcast, as she discusses her unique journey through Hirschsprung's disease and motherhood.


Rachel has been a fantastic advocate for Hirschsprung's as…

00:47:03  |   Thu 10 Oct 2024
Episode 39 - With Jodi Longdo

Episode 39 - With Jodi Longdo

3 time Ironman finisher Jodi Longdo joins me to talk about her near 50 year journey through sport and healthcare with Hirschsprung's Disease.


As well as an Ironman, Jodi is also a fully qualified Pa…

00:41:38  |   Thu 03 Oct 2024
Episode 38 - With Steffy and Samantha Little

Episode 38 - With Steffy and Samantha Little

In the second part of my interview with Steffy, we are joined by her daughter Samantha as we discuss sporting life with Hirschsprung's Disease.


Samantha reveals her swimming aspirations and the hope…

00:41:51  |   Thu 26 Sep 2024
Episode 37 - With Toni Schneider

Episode 37 - With Toni Schneider

This week I chat with Ostique COO, (Chief Operating Officer) Toni Schneider about how the business was formed through 3 school friends with a shared passion for helping others.


Around the mid-point …

00:45:18  |   Thu 19 Sep 2024
Hirschsprung's Explanation Episode

Hirschsprung's Explanation Episode

In what should have probably been episode 1!! Me and my two co-founders, Louisa Shapton and Carla Scaramella, explain Hirschsprung's Disease to you.


I will start by talking about what HD is and the…

00:11:25  |   Mon 16 Sep 2024
Episode 36 - With Charlotte

Episode 36 - With Charlotte

In this weeks edition of the podcast Charlotte joins me to talk about a variety of conditions including:- EDS, POTS, MCAS, suspected endo, cPTSD and brain damage related balance issues.

Charlottes up…

00:46:43  |   Thu 12 Sep 2024
Special AMA (Ask Me Anything) episode

Special AMA (Ask Me Anything) episode

A special AMA episode, where I answer your questions that have been sent in over the last couple of weeks. 12 questions will be answered from a variety of people on all manner of different topics.


P…

01:00:41  |   Sun 08 Sep 2024
Episode 35 - With Nicole and Benjamin Perry

Episode 35 - With Nicole and Benjamin Perry

In the first Mother/Son podcast episode, I am joined by Nicole and Benjamin Perry, Nicole talks about the ups and downs of hospital life as well as the 22 months wait for Benjamin's HD diagnosis.

Ben…

00:46:20  |   Thu 05 Sep 2024
Episode 34 - With Lauren Wood

Episode 34 - With Lauren Wood

In this weeks episode I am joined by Lauren Wood as she shares her story about life with Hirschsprung's disease as well as how her stoma saved her life.


We talk extensively about Lauren's raising aw…

00:28:24  |   Thu 29 Aug 2024
Episode 33 - With Rebecca Johnson-Richards

Episode 33 - With Rebecca Johnson-Richards

Endometriosis will be the main topic of discussion for this episode as Rebecca talks to me about her condition and the 10 year wait for a diagnosis!

Rebecca tells her brave story of having to advocat…

00:33:29  |   Thu 22 Aug 2024
Episode 32 - With Zoe Colletti

Episode 32 - With Zoe Colletti

A very special episode of the podcast sees actor and TV star, Zoe Colletti, joins me to talk about her life with Hirschsprung's disease as well as her phenomenal acting career.


We start Zoe's story …

00:49:41  |   Thu 15 Aug 2024
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