Welcome to the #1 Hirschsprung's Disease podcast...in the world!!
I provide a look into the remarkable experiences of some of the most inspiring people around this little known condition, that effects every 1 in 5000 people worldwide.
This podcast must not be taken as generic medical advice, but please feel free to enjoy the positive stories and take inspiration from my guests journeys and achievements.
My guests may not all have Hirschsprung's disease and may include people with Crohn's, Colitis or IBD as they show similar effects to Hirschsprung's Disease.
Please enjoy the show!!!
Following on from our 1st episode in mid-November Robyn joins me once again to give an update on her daughter Charlee, as we discuss her Ace Malone procedure that she had in December.
We start at the …
In this weeks edition of the show, I chat to Elle about her story with Hirschsprung's and how, as a women in her mid 20's, this has impacted her life both positively and negatively.
We take a deep di…
In the second part of my chat with Faye we talk about a variety of Hirschsprung's topics, including the impact it has had on Faye's life.
In a more light-hearted segment, we talk about our mutual love…
With a long and complicated medical history, Faye chats to me about how her epic journey with Hirschsprung's unfolded.
An incredible story of mental and physical resilience, Faye also explains how imp…
For this episode I welcome back Laura, who gives the exclusive lowdown on her latest exciting business venture, as well a recap of an important IBD fitness event in London.
Laura talks about how her c…
The first Ultra-short segment episode of the series as Anrie joins me to talk about her son's unusual diagnosis, and ultimately thriving journey.Based in South Africa, Anrie chats to me about how the…
Tash joins me to talk about her two sons who were both born with two very different types of Hirschsprung's, despite not having any family history.We follow the journey from the very beginning from M…
The Co-Founder of REACH HD joins me to talk about how the charity started and why the dual diagnosis of Hirschsprung's and Downs Syndrome have a personal connection to her.
Isabelle also chats about t…
In this episode myself and Tom's Hirschsprung's Podcast Co-Founder Louisa Shapton are joined by Megha, who only gave birth 6 WEEKS AGO!, to talk about her daughter's experience with Total Colonic Hir…
The author and founder of The Abilities In Me Foundation, Gemma Keir, shares her incredible journey with the charity from the very beginning. Gemma talks about her inspiration for starting the book …
The author of 'Oscar The Unstoppable' , Simone Rist, joins me to talk about her son's Hirschsprung's story as well as her brilliant book, all about perseverance through Hirschsprung's disease. Simon…
Courtney chats to me about the need for advocacy as well as how having the power of positivity helped her and her family through some incredibly tough moments. Courtney's son, Theo, was born just ov…
With over 6 decades of lived experience with Hirschsprung's, Sherry recounts her amazing story as well as her admiration for world renowned surgeon, Dr C Everett Koop.
We discuss the importance of h…
This week we discuss Krew's HD journey as his mum Lexi joins me to talk about her happy, jolly, 9 month old.
Having had a daughter already, and with no family history of Hirschsprung's, Lexi tells t…
The second part of my interview with Hannah we talk about her legal fight against the NHS, in her pursuit for justice. Hannah talks candidly about the emotional rollercoaster that she faced as well …
In the first part of Hannah's episode, we talk about her son's diagnosis of Hirschsprung's Disease as well as the the extraordinary lengths that her family went to in their fight for a diagnosis.
Late…
As the podcast celebrates it's first birthday, I am delighted to be joined by not one, but two guests in a returning Fred Gray and a man I've not seen in over 20 years, Mr Curry. We discuss Mr Curry…
1 years worth of the podcast is celebrated as I welcome Gemma to talk about her daughters Hirschsprung's diagnosis and the challenges that Dorothy has overcome.
Gemma recounts her story over 5 hectic …
Actor, Director and RADA Alumni, Fred Gray discusses his experiences with Total Colonic Hirschsprung's as well as his talking about his son and father who also have HD.
6 weeks ago I interviewed Fre…
Hirschsprung's nurse specialist Karen, talks about her decade plus experience as a nurse, specialising in Hirschsprung's disease.
Coming from a family of teachers Karen always knew that she wanted t…