I AM MADELINE
A performer (actress, singer), leader, mentor, & community volunteer with her hands on a number of projects, Madeline(now fully public as Marcia)is a joy to know. She loves gardening & The Sound of Music. Her friends describe her as "effervescent."
She's one of more than 600,000 Canadians living with family of diseases twice as common as Multiple Sclerosis, little doctor education, strong correlation to viral infections, esp COVID-19. She & others face painful deadly deterioration without more government supports.
Petition
https://bit.ly/Marcia_petition
GoFundMe https://gofund.me/6d981312
- Update frequency
- every 8 days
- Average duration
- 22 minutes
- Episodes
- 112
- Years Active
- 2021 - 2025
Worrisome Neurological Exam Today
An update talking about an in-person neurological exam I had today. Telehealth with my primary care allopath a few weeks ago had concerned her enough to bring me in for an in-person appointment to as…
00:25:50 |
Wed 13 Sep 2023
Coping, Denial or Both
Where I attempt to puzzle out explaining some of my coping strategies. Also ombudsman update plus an article that includes me should be coming out soon update.
I talk about MS and ME briefly in this…
00:36:15 |
Sat 26 Aug 2023
Hyperbaric №11-14, plus new supplements updates
I finally get around to talking about hyperbaric chamber treatments 11 through 14. And I talk about why it took so long to do so. Lots of stuff going on, all of it difficult, hard upon already hard. …
00:14:34 |
Wed 23 Aug 2023
The straw that has broken this camel's back
Today is very much the epitome of the adage *the straw that breaks the camel's back*. I thought I'll say what's happening while it's happening because this is exactly what it's like to be one of them…
00:16:29 |
Sat 05 Aug 2023
HBot 9/10 plus ombudsman calls
Hyperbaric Chambers 9 and 10 + calls with the British Columbia Ombudsman office which are a very interesting possibility....
Gfm https://gofund.me/cff39173
00:22:34 |
Thu 03 Aug 2023
Scarcity/Bounty Dance
What is bounty and how do we as humans use it to navigate difficulty. In this podcast episode I begin to have a conversation about scarcity and bounty especially in regards to persons with disability…
00:39:20 |
Mon 31 Jul 2023
HB 7&8 plus external impacts
I talk about hyperbaric chamber treatments 7 and 8 along with the impacts of volunteering and having to deal with a host of day-to-day advocacy and self-care issues which all impact hyperbaric effica…
00:23:58 |
Tue 25 Jul 2023
Good News/Bad News + HB in-between info
Good news /bad news, been a roller coaster few days. Plus some surprising improvements that can only be due to the hyperbaric especially in the face of the music Fest volunteering that I did.
The ph…
00:13:59 |
Mon 17 Jul 2023
Hyperbaric #s 4,5,6 Tired Brain Forgetful edition
It looks like I've brain fog miscounted hour many HB so far, and also forgot to document one treatment. Also tired brain used the wrong mic, so I'm sorry it's not recorded as clear as i like, LE SIGH…
00:27:31 |
Fri 14 Jul 2023
Primer for Parents & caregivers of PVS children, esp those with myalgic encephalomyelitis
This episode I try to pull my thoughts together to speak to parents and caregivers of person's with post viral diseases especially myalgic encephalomyelitis. This was inspired by
Andrea Haefele of ww…
00:26:36 |
Wed 12 Jul 2023
HB #3 - The Hot Mess Edition
Where I talk about the hyperbaric chamber I did Wednesday, #3, on June 26th and how that's going and how the emotional impacts of running out of gofundme money are affecting efficacy of treatment and…
00:19:28 |
Tue 04 Jul 2023
2nd hyperbaric chamber
The second hard shell hyperbaric chamber treatment plus some concerns about developing situational depression due to running out of gfm money mid July and trying to decrease treatments in very worris…
00:09:22 |
Mon 26 Jun 2023
Hyperbaric Chamber June 20th 2023
I'm going to document each hyperbaric treatment and any symptoms whether they be decreased or exacerbated and exactly what's going on. Partly as general information, but mostly in the hopes that I wi…
00:09:38 |
Fri 23 Jun 2023
Inside Insomnia
An inside view on my insomnia, especially when I decrease treatments. Definitely a part of the suffering Olympics
00:09:09 |
Mon 19 Jun 2023
Suffering Olympics
The suffering olympics, inspired by a comment on the GoFundMe, which you can find here https://gofund.me/cff39173 *Elizabeth King comment
I've got moderate to mild M.E, and I haven't been tested by …
00:53:30 |
Fri 16 Jun 2023
Quickie update June 13th
An update about what's happening, how much time I have AKA how much GoFundMe money and how I can stretch it and how I'm trying to stretch it which is hugely problematic, treatment tweaks, infection m…
00:35:53 |
Wed 14 Jun 2023
Doctors politicians bureaucrats lend me your ears
And by titling this ep, "Doctors, Politicians, Bureaucrats; Lend me your ears", I am indeed borrowing from Shakespeare's Julius Caesar as a way to start a direct but gentle and open conversation abou…
00:57:59 |
Tue 30 May 2023
Laugh & the World laughs with you, Cry & you cry alone.
I think the title sums it up. I pretty much put it all on the line about how I'm feeling about running out of money for treatments and supports at the end of May
The picture is from easter where I f…
00:31:32 |
Sat 22 Apr 2023
Hope and Despair; the terrible dance
Where I decide to talk through my feelings after listening to the university of British Columbia Community radio station episode of the accessibility collective on citr that I participated in. How ca…
00:30:48 |
Fri 07 Apr 2023
"Seeming ok"; the GREAT MISUNDERSTANDING
Seeming okay is not the same as being okay. I do my best to explain what's the what with that and the harm it can do
00:26:20 |
Thu 09 Mar 2023
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