I AM MADELINE
A performer (actress, singer), leader, mentor, & community volunteer with her hands on a number of projects, Madeline(now fully public as Marcia)is a joy to know. She loves gardening & The Sound of Music. Her friends describe her as "effervescent."
She's one of more than 600,000 Canadians living with family of diseases twice as common as Multiple Sclerosis, little doctor education, strong correlation to viral infections, esp COVID-19. She & others face painful deadly deterioration without more government supports.
Petition
https://bit.ly/Marcia_petition
GoFundMe https://gofund.me/6d981312
- Update frequency
- every 8 days
- Average duration
- 22 minutes
- Episodes
- 112
- Years Active
- 2021 - 2025
From YT Holiday Magic & Melancholy
Turned out to be surprisingly easy to convert the YouTube video to audio only so you could have it on both YouTube and the podcast platforms. I tried to play with the audio a little bit cuz my video …
00:24:46 |
Sun 24 Dec 2023
Holiday Magic & Melancholy YouTube link
Tech support on this site is trying to figure out why the link generator is generating problematic links meaning that some people especially coming from social media are not able to play on the websi…
00:02:15 |
Sun 24 Dec 2023
Birthday Blessings & Blues
My birthday is coming up and I'm having all kinds of feelings about it so I thought I would share. The photo is from a story I talk about in the episode about my 10th birthday
For those who don't kn…
00:17:41 |
Sat 16 Dec 2023
YouTube videos live 6:00 p.m. Pacific standard Time December 7th
I have much to update you on but I will do that at another time as I've overdone on textual communication this week.
I wanted to let you know that I made three YouTube videos that I've set to premi…
00:02:42 |
Thu 07 Dec 2023
Less Crush More Bounce
I think the title sums it up. I talk about some good things that have happened and how I'm navigating the week leading up to the next fire suite t inspection with a little more resiliency. In the las…
00:28:44 |
Thu 30 Nov 2023
Crush
Today I talk not just about the pain and exhaustion and pushing through to get ready for the second fire inspection, but individual and collective ableism creating a situation that sends the message,…
01:09:02 |
Sun 19 Nov 2023
Ableist Tenancy Risk
In this episode I talk about today's suite inspection, the unrealistic ableist expectations and timelines (plus assumptions of supports that don't exist within the system and definitely not for my di…
00:21:33 |
Wed 08 Nov 2023
Eclectic episode=law/clean/hbot/tiktok/paxlovid
So much happening to me, non of it easy or fun. Pro bono clinic says no, suite inspection colliding with med appts, hyperbaric chamber improvements, intravenous issues, long shot of tiktok, & am I of…
00:41:40 |
Sat 21 Oct 2023
Thanksgiving Fun but then CRAPTASTICNESS aka Why Does The Universe Hate Me
I was going to title this episode why does the universe hate me, because today it was one hard thing after the other. But towards the end I got to thinking about how wonderful things giving was. But …
00:17:15 |
Fri 13 Oct 2023
Brutality of post-exertion symptom exacerbation due only to lack of supports
I thought I would talk through post-exertion symptom exacerbation #pese while it was happening. I know that it's very hard for somebody who hasn't experienced it to really understand what it's like. …
00:19:07 |
Tue 03 Oct 2023
Ricochet article feels
It's been about 5 hours since the Ricochet articles been out. Trying unsuccessfully not to get my hopes up. Super burnt from doing my best to share the article on social media and with my social netw…
00:05:26 |
Fri 29 Sep 2023
Vision Thing PLUS Ricochet article+ Immunologist + Hbot update
A big welcome to ricochet readers finding this podcast due to the article written by Simon Spichak ( https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty )! Fyi this was recorded on Aug…
00:54:07 |
Fri 29 Sep 2023
Meltdown post COVID
Looking at my bank account trying to figure out how to afford treatments next week trying to figure out how to stay alive trying to figure out how to pull the energy together to clean my apartment so…
00:13:58 |
Wed 27 Sep 2023
Covid update Sept 25
After #paxlovid but before getting back on the intravenous I'm in a nether world of pre-existing symptom worsening
00:07:58 |
Mon 25 Sep 2023
COVID burnt +paxlovid unexpected good results
COVID burnt(sooooo extra dangerously tired) +paxlovid unexpected good results on pre-existing postviral syndrome symptoms
00:08:10 |
Sat 23 Sep 2023
Dark Morning Of The Soul
The sun is shining through my window it's almost 9:00 a.m., but my thoughts and emotions are in a dark place.
00:11:50 |
Thu 21 Sep 2023
F*********K
An episode in which I curse, a lot. You were warned
Theme song of this episode https://youtu.be/Vqbk9cDX0l0?si=1hUdr5UqJQ2mlEQ7
00:07:21 |
Thu 21 Sep 2023
Covid & the ER
The mucus that I'm producing at the base of my throat to the covet turned out to be so thick that when I stood up quickly to go to the door to get a delivery of supplies from a friend it's covered my…
00:17:10 |
Tue 19 Sep 2023
Irony: Caught covid at LifeLabs getting immune function tests
I tested positive for covid Saturday the 16th but fever and chills started the night before. First I thought it was just the mitochondrial issue cuz I pushed so far outside my energy envelope, but no…
00:11:27 |
Mon 18 Sep 2023
Perils Of Minimal Supports
I'm having quite the interesting 24 hours and not in a good way. Minimal supports has meant I've had a bad reaction to one of my treatments, actually both of my treatments today simply because minimu…
00:15:51 |
Sun 17 Sep 2023
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