MyFSHD

“Invention, my dear friends, is 93% perspiration 6% electricity 4% evaporation and 2% butter scotch ripple.”  Natalie Cooney and Emma Weatherley sit down with MyFSHD to talk about how initiatives fro…

"Who's gonna turn down a Junior Mint? It's chocolate, it's peppermint..... it's delicious!"  Tamara and Michael Gottlieb join us to discuss how nutrition, vitamins, dietary supplements, and lifestyle…

"The creatures outside looked from pig to man, and from man to pig, and from pig to man again; but it already was impossible to say which was which."  Peter talks a bit more about the FSHD-like minip…

"Go the distance."  Jenny Hasenjaeger of MyFSHD sits down with Ben Brittain to discuss his FSHD and what he intends to do about it.

"We'll burn that bridge when we get to it."  Our FSHD dad lets rip with his thoughts and opinions on all things FSHD in a whirlwind discussion with Dr. Jones trying to keep up.  And bears; a little b…

"So shines a good deed in a weary world."  It is our 40th episode, so we are recapping and reintroducing ourselves to the wider audience.

"What am I working on? Uhhh, I'm working on something that will change the world and human life as we know it."  It's not teleportation, but, at your request, Drs Charis Himeda and Peter Jones discus…

"Let’s win this one for all the small schools that never had a chance to get here."  Everything is possible with talented people sincerely dedicated to a cause.  Today MyFSHD welcomes one of the best…

"I've never had anything you doctors didn't try to cure with leeches."  Kate Fowles hosts Dr. Channa Hewamadduma, Consulting Neurologist at the University of Sheffield Neuroscience Institute, as they…

"You stay classy, San Diego. I'm Ron Burgundy?"... "Dammit, who typed a question mark on the TelePrompter?... Anything you type, Burgundy will read!" Dr. Peter Jones talks recent developments in the …

"Here they are, back after their exclusive three-year tour of Europe, Scandinavia and the subcontinent."  MyFSHD is back in Reno, but the work never stopped, and we are answering some common question…

"It's a bold strategy, Cotton. Let's see if it pays off for 'em."  Coming to you from NYC where Dr. Peter Jones is with Ms. Nguyen Cam Thi talking about her personal journey with FSHD and the impact …

"Failure is not an option."  Dr Peter Jones and MyFSHD Ambassador Ms Nguyen Cam Thi, an FSHDer from Hanoi Vietnam, discuss FSHD on World FSHD Day 2022.

"My (girl's) wicked smart." Today we talk with Ms Hannah Moore who is just finishing up 3 years of research on FSHD in the Jones lab at UNR, having made numerous significant contributions to the prog…

"Fascinating!  Semmi, look at this!  America is great indeed.  Imagine a country so free, one can throw glass on the streets!"   Today we are recapping our biomarker discussion, answering some questi…

“My mind is a raging torrent flooded with rivulets of thought cascading into waterfalls of creative alternatives”. Today’s podcast features Dr. Andreia Marcelino Nunes discussing FSHD biomarkers and …

"You get what you settle for." We talk a little bit about animal research in FSHD and answer some questions from the community.

"Yeah, well, that's just, like, your opinion, man."  Brad Hasenjaeger, our FSHD Dad, fires questions at Dr. Peter Jones around the drug development pathway for FSHD.  A casual back and forth, as we d…

"As far back as I can remember I always wanted to be a gangster."  It's Memorial Day Weekend in the USA and we are eternally grateful for those in the military who sacrificed their lives fighting for…

"Setting squirrel traps while elephants stomp you into pancakes."  Dr. Jones addresses questions about FSHD diagnostics and stem cells.