Living With Cystic Fibrosis

Lily and her husband Jon had 4 children and they were content.  They bought a little farm in Ohio. Jon is a former Marine now working as a civilian to support his family. Then months after a tubal li…

Ashley Ballou-Bonnema was featured on CBS Sunday Morning, with Jane Pauley.  That's when I saw her, and screamed from the couch!  I backed up the program to get her name, and knew that I had to get i…

Dr. Paul Quinton's early discovery of the defect in CF that prevents chloride ions from crossing cells changed our CF world, and his work allowed us to get to where we are today. When he made his dis…

For more information on The Bonnell Foundation and how you can help fight CF in Egypt, find us at https://thebonnellfoundation.org/

Find Project CF Spouse here: https://www.projectcfspouse.com/

Vertex …

Thirty thousand people in the United States have cystic fibrosis, and 5 percent of those people are African Americans.  At least that's what the statistics show.  Michele and Terry Wright believe (an…

The Middle East CF association (MECFA) is working to make lives better for people cystic fibrosis. Christine Noke is the co-founder and CEO of MECFA. The stories you will hear in this podcast are som…

CF Vests 4 life was started by Rod Spadinger and Mark Tremblay.  They're on their journey to becoming a 501(c)3.  They're doing great work helping people all over the world get the medical vests they…

Dr. Maggie Naguib works at Cairo University in Egypt and is a Professor of Pediatrics.  She talks to Host Laura Bonnell in this podcast, along with Dr. Samya Nasr from the University of Michigan hosp…

Podcast Episode: Dr. Samya Nasr – Changing the CF Landscape in Egypt and Beyond

In this powerful episode, we’re joined by Dr. Samya Nasr, Director of the Cystic Fibrosis Clinic at the University of Mi…

Thirty-five-year-old Anas Mansour has 5-year-old twin boys with cystic fibrosis. He lives in Cairo, Egypt.  Mansour and his wife are trying to keep the boys as healthy as possible, but it is challeng…

Two doctors, (one who works in Egypt and one in the U.S.) talk about health inequities. In Egypt life expectancy for people with CF is 8 years old, it’s 50 years old in the U.S.  Why? Dr. Eman Fouda …

Bike to Breath is coming up quickly (Monday the 21st of September through Friday the 25th).  Two friends of the Bonnell Foundation, and the CF Community are getting on their bikes and riding from Bos…

Beth Vanstone talks about how a CF diagnosis thrust her into the world of advocacy.  The two Moms (Laura and Beth) quickly find they have so much in common, from victories to challenges, even though …

Laura Bonnell (Detroit), Kat Porco (Montana), Jen Caruso (Delaware) and Siri Vaeth (California) have have 5 children with cystic fibrosis between them. The kids are ages 14 to 25 years old.  This CF …

I am so proud to bring you our CF partners from around the Country, (Siri Vaeth, CFRI, Inc., Lee Becker and Jerry Cahill, Boomer Esiason Foundation, Brian Callanan, CFLF and Emily Schaller, Rock CF F…

The reason the Bonnell Foundation began was because I had two daughters with cystic fibrosis. This episode is my girls perspective. They live life to the fullest.  They both traveled to Nicaragua for…

When you think about cystic fibrosis, you probably think about the patient, and the parents who take care of them until they're adults.  But what about a patient's spouse or partner? When a person st…

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The Bonnell Foundation

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Resources:

The Bonnell Foundation

Email The Bonnell Foundation

Michigan Department of Health and Human Services

Please like, subscribe, and comment on our podcasts!

Please consider making a donation: h…

For more information please visit the following sites:

https://thebonnellfoundation.org

http://www.childrenshospital.org/directory/physicians/u/ahmet-uluer

https://www.facebook.com/thebonnellfoundation/