Brain Health and Lupus: Centering Communities in Research

“We are not bystanders, we are participants. We are partners and leaders in this space.” – Dr. Renarda Jones

In this solo episode of Voices of Inclusive Research, I open up about why this work matters and why health equity must stay at the heart of clinical research.
I share why brain health and lupus, conditions that deeply impact communities of color, aren’t just medical terms, but lived experiences for families and caregivers.

Even with challenges like limited funding and pushback, we at Diverse Research Now keep pressing forward with community events, partnerships, and advocacy—because no one should be left out of the science that shapes our future.

🎧 Tune in to hear why this work is about equity, hope, and building healthier futures together.

Must-Hear Insights and Key Moments

• Why Brain Health Matters – Dementia and memory loss impact not just individuals, but entire families and communities. Education and awareness are essential for prevention and support.
• Lupus in Focus – Often misunderstood, often misdiagnosed, and disproportionately affecting Black women—lupus requires more resources, visibility, and research equity.
• Health Equity at the Core – Diversity and inclusion are part of the mission, but the bigger picture is ensuring everyone has access to the best science, care, and opportunities—no matter who they are or where they live.
• The Call to Action – From community events like Chow & Chat to partnerships with churches, workplaces, and researchers, real impact happens when everyone shows up and works together.
• Commitment Despite Challenges – The mission continues: standing with communities and building a healthier, more equitable future.

Words of Wisdom: Standout Quotes from This Episode

• We are not bystanders, we are participants. We are partners and leaders in this space.” – Dr. Renarda Jones
•  “Health equity means no matter where you live, what you look like or what your income is, you should have access to the very best science, the very best care, and the very best opportunities to live a healthy life.” – Dr. Renarda Jones
• “This work is about families, about stories, and about building a future rooted in equity and health and hope.” – Dr. Renarda Jones

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We Want to Hear Your Voice!

Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!