For this weeks episode I talk to the 'Hirschsprung's Aware Bears' founder Lori, who chats to me about her experiences with her daughter Alexis, who has Hirschsprung's disease.
We discuss Alexis's diagnosis and how far medical advancements have evolved since 1986, we talk through her journey from the difficult early days to her life as a happy, successful mother of 3.
In the second half of the episode we discuss the formation of Hirschsprung's Aware Bears, how and why it was formed and how Lori helps people from all over the world
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