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Tom's Hirschsprung's Podcast - Podcast

Tom's Hirschsprung's Podcast

Welcome to the #1 Hirschsprung's Disease podcast...in the world!!

I provide a look into the remarkable experiences of some of the most inspiring people around this little known condition, that effects every 1 in 5000 people worldwide.

This podcast must not be taken as generic medical advice, but please feel free to enjoy the positive stories and take inspiration from my guests journeys and achievements.

My guests may not all have Hirschsprung's disease and may include people with Crohn's, Colitis or IBD as they show similar effects to Hirschsprung's Disease.

Please enjoy the show!!!

Personal Journals Society & Culture
Update frequency
every 7 days
Average duration
42 minutes
Episodes
92
Years Active
2024 - 2025
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Episode 89 - With Saffire Eden

Episode 89 - With Saffire Eden

Some very important topics are discussed in today's episode, as I chat with Saffire about her daughters diagnosis of Hirschsprung's 9 months ago. During what was undoubtedly a very stressful and worr…

00:41:54  |   Thu 18 Sep 2025
Episode 88 - With Sadie Goldthorpe

Episode 88 - With Sadie Goldthorpe

Sadie joins me to talk about her 4 year son Cody and his Hirschsprung's story.


We start the story when Sadie is 10 weeks pregnant and she has a test for Cody that comes back as 1 in 8 chance of her s…

00:45:14  |   Thu 11 Sep 2025
Episode 87 - With Alexa Murphy

Episode 87 - With Alexa Murphy

We start this episode 7 months ago, Lexi has just given birth to her third child, Emmett and like many people, has no family history of Hirschsprung's and has never heard of the condition!


What follow…

00:43:38  |   Thu 04 Sep 2025
Episode 86 - With Kirstie and Aubrey Law

Episode 86 - With Kirstie and Aubrey Law

2 generations of Hirschsprung's are discussed with Kirstie and her daughter Aubrey, we mainly chat about Aubrey's journey with TIA (Total Intestinal Aganglionosis)


Aubrey chats about her condition, in…

00:44:20  |   Thu 28 Aug 2025
Episode 85 - With Kelly Kronowski

Episode 85 - With Kelly Kronowski

Kelly chats to me about her son Kellen, who has Hirschsprung's and is 7 and half years old.

In this episode we discuss the vital importance of mothers intuition and the need for this intuition to be …

00:49:03  |   Thu 21 Aug 2025
Episode 84 - With Gemma Pope and Carl Ray

Episode 84 - With Gemma Pope and Carl Ray

Gemma and Carl discuss 3 generations of Hirschpsrung's with a surprise genetic twist!


Carl, Gemma and Gemma's daughter Jessica all have Long Segment Hirschsprung's despite Gemma being the oldest of 6 …

00:50:46  |   Thu 14 Aug 2025
Episode 83 - With Anna Obendorfer

Episode 83 - With Anna Obendorfer

I'm joined by Anna, this time from America.


Anna talks through her son's journey with short segment Hirschsprung's Disease and we cover a wide range of topics throughout the hour + long episode.


Topic…

01:09:57  |   Thu 07 Aug 2025
Episode 82 - With Amy Parker (Part 2)

Episode 82 - With Amy Parker (Part 2)

Starting straight from the last episode, when Amy's daughter had her stoma fitted, we talk about how stoma care differs from country to country.


With the first 6 months being incredibly difficult Amy …

00:56:15  |   Thu 31 Jul 2025
Episode 81 - With Amy Parker (Part 1)

Episode 81 - With Amy Parker (Part 1)

China is our next stop as I chat with Amy all about her daughter's diagnosis of Hirschsprung's Disease from Zambia to China via the UK.


From doctors being puzzled as to what might be wrong to having t…

00:48:42  |   Thu 24 Jul 2025
Episode 80 - With Kaytlin Slaughter

Episode 80 - With Kaytlin Slaughter

In todays episode, conducted from the hospital room, Kaitlyn chats to me about her 5 year old daughter, including topics such as diet, Hirschsprung's resources, procedures and parental health.


Kaitlyn…

00:45:32  |   Thu 17 Jul 2025
Episode 79 - With Libby

Episode 79 - With Libby

Libby shares the story of her 2 year old daughter with Hirschsprung's from the very start.


We begin with Libby being discharged from hospital with her daughter, despite Darla not passing her meconium …

00:46:41  |   Thu 10 Jul 2025
Episode 78 - With Taylor Lammonds

Episode 78 - With Taylor Lammonds

With no family history of Hirschsprung's, Taylor discusses her journey so far about her son Bowen, who is 7 months old.


Bowen was diagnosed with Hirschsprung's despite passing his meconium at 3 weeks …

00:50:01  |   Thu 03 Jul 2025
Episode 77 - With Georgina Merckel (Part 3)

Episode 77 - With Georgina Merckel (Part 3)

In this episode we follow on from last week, where we talked about the new Hirschsprung's website, www.hirschsprungsdisease.co.uk and how this all came to be.


Later on Georgina gives us an update on h…

00:49:08  |   Thu 26 Jun 2025
Episode 76 - With Georgina Merckel (Part 2)

Episode 76 - With Georgina Merckel (Part 2)

Nearly 7 months after her last appearance, Georgina talks to me about her exciting new project - a UK dedicated Hirschsprung's website!


In the first half of the 2 part special we delve into the stats …

00:47:07  |   Thu 19 Jun 2025
Episode 75 - With Ollie McFarlane

Episode 75 - With Ollie McFarlane

Actor and personal trainer, Ollie chats to me about how his career is going as well as some funny stories along the way.


Ollie was diagnosed with short segment Hirschsprung's Disease and has had 5 su…

00:49:41  |   Thu 12 Jun 2025
Episode 74 - Ashley Matthews (Part 2)

Episode 74 - Ashley Matthews (Part 2)

In the second part of my chat with Ashley, we talk about the somatic energy in relation to Hirschsprung's and how attunement plays a vital role in the relationship between a parent and child.

Ashley i…

00:48:09  |   Thu 05 Jun 2025
Episode 73 - With Ashley Matthews (Part 1)

Episode 73 - With Ashley Matthews (Part 1)

Ashley chats about her son, Milo and his dual diagnosis of Hirschsprung's and Downs Syndrome, as well as some handy tips when it comes to performing enemas, belly massages and irrigations.


Part 2 comi…

00:50:20  |   Thu 29 May 2025
Episode 72 - With Rebecca Wichert

Episode 72 - With Rebecca Wichert

*****Trigger warning - contains suicide*****

Rebecca recounts her daughter's story with long segment Hirschsprung's disease as well as the 7 MLB's, 3 intestinal surgeries and 6 central line placements…

00:51:18  |   Thu 22 May 2025
Episode 71 - With Lila Mackenzie

Episode 71 - With Lila Mackenzie

This week we take another trip to Australia as Lila discusses her experience of being a Hirschsprung's mum with a 14 month old son.


With no family history of HD and being a mum to two children already…

00:49:48  |   Thu 15 May 2025
Episode 70 - With Tash Jacobs (Part 2)

Episode 70 - With Tash Jacobs (Part 2)

Tash is back to talk about some important subjects the lifestyle that we didn't get time to chat about on the last episode.


Topics that we cover today will be; how life is now for Tyler and Casey, tra…

00:41:34  |   Thu 08 May 2025
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