Episode 427: Lyme and Alpha Gal - an interview with Nicholas Perfumo

In this enlightening episode of the Tick Boot Camp Podcast, host Matt Sabatello and special guest co-host Candace Matthis from Two Alpha Gals sit down with Nick Perfumo, a 37-year-old from Greensboro, NC, who shares his challenging journey with Lyme disease, Alpha-gal syndrome, Mast Cell Activation Syndrome (MCAS), and Ehlers Danlos Syndrome (EDS). Nick discusses his life before and after the diagnosis, detailing his symptoms, the impact on his personal and professional life, and his ongoing battle to regain his health.

Key Topics Discussed:

• Nick's active outdoor lifestyle before Lyme and how frequent tick exposure gradually took its toll.


• The onset of severe symptoms in his early 20s, leading to a significant impact on his quality of life.


• His experiences with various treatments, including the Desert Bio (DesBio) protocol, Low-Dose Naltrexone (LDN), Japanse Knotweed (Boba BB VII), testosterone hormone therapy, Methylene Blue, and the Cowden Protocol.


• Candace Matthis provides insights into living with Alpha-gal syndrome and co-hosts a deep dive into managing this complex condition alongside Lyme disease.

Guest Bio: Nick Perfumo is an outdoor enthusiast and former air traffic controller whose life was drastically altered by Lyme disease and other tick-borne illnesses. Now managing a 911 dispatch center, Nick is a vocal advocate for proactive health management and tick disease awareness.

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