These Kids Can't Wait
Welcome to These Kids Can't Wait. A podcast that brings you closer to researchers, doctors, and advocates working to drive progress and raise awareness for rare diseases.
- Update frequency
- every 24 days
- Average duration
- 45 minutes
- Episodes
- 9
- Years Active
- 2025
Episode 9: A Boots on The Ground Approach
Episode 9: Turning Hope into Action
🎙️ Hosts: Erin Hubbard and Laurel Gregier
🎤 Guest: Kristin Andrus
📅 Release Date: 9/12/2025
🔬 Topic: Philanthropy, Family Values, and Building Stronger Communities
Epis…
Episode 8: Turning Hope into Action
🎙️ Hosts: Erin Hubbard, Laurel Gregier, and Lorena Lomelin
🎤 Guest: Mathias Schmidt
📅 Release Date: 7/11/2025
🔬 Topic: Breaking the Blood-Brain Barrier, Compassionate Use, and the Power of Patient-Cente…
Episode 7: Woman Made Well: Overcoming Challenges in Motherhood
🎙️ Hosts: Erin Hubbard
🎤 Guest: Dr. Candice Wood
📅 Release Date: 6/9/2025
🔬 Topic: Postpartum Mental Health, Holistic Women’s Care, Motherhood & Burnout, Supporting Rare Disease Families
Episode Over…
Episode 6: Transplanting Hope
🎙️ Hosts: Erin Hubbard and Laurel Gregier
🎤 Guest: Dr. Paul Orchard
📅 Release Date: 5/12/2025
🔬 Topic: Bone Marrow Transplants, Gene Therapy, and the Future of Rare Disease Treatment
Episode Overview
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Episode 5: A Deep Dive into Rare Disease Research: Part 2
Episode 5: A Deep Dive into Rare Disease Research: Part 2
🎙️ Hosts: Erin Hubbard, Laurel Gregier
🎤 Guest: Dr. Martin
📅 Release Date: 4/21/2025
🔬 Topic: Advancing Research for Beta-Mannosidosis
Episode Ove…
Episode 4: A Deep Dive into Rare Disease Research: Part 1
🎙️ Hosts: Erin Hubbard and Laurel Gregier
🎤 Guest: Dr. Angela Martin
📅 Release Date: 4/8/2025
🔬 Topic: Understanding Beta-Mannosidosis and the Innovation Behind Enzyme Replacement Therapy
Episode Overvie…
Episode 3: Living with Alpha-Mannosidosis – A Patient’s Perspective
🎙️ Host: Erin Hubbard
🎤 Guest: Sarah Forsman
📅 Release Date: 2/28/2025
🔬 Topic: Life with Alpha-Mannosidosis and the Impact of Early Treatment
Episode Overview
In this episode of These Kids Can’t Wait, ho…
Episode 2: A Novel Treatment for Beta-Mannosidosis
🎙️ Hosts: Lorena Lomelin and Phoebe Wang
🎤 Guest: Dr. Virginia Kimonis
📅 Release Date:2/28/2025
🔬 Topic: A deep dive into rare disease research.
Episode Summary:
In this episode of These Kids Can’t Wai…
Episode 1: An Introduction to The Lost Enzyme Project
🎙️ Hosts: Erin Hubbard, Laurel Gregier, and Lorena Lomelin
📅 Release Date:2/28/2025
🔬 Topic: Story Behind the Lost Enzyme Project
Episode Overview
In this inaugural episode of These Kids Can’t Wait, we a…