Chronic illness with with Tasha Sorhaindo, Chronically Marvellous

Tasha Sorhaindo shares her journey living with multiple chronic health conditions and founding her charity, Chronically Marvellous, that supports individuals with non-visible disabilities.

Tasha is autistic and lives with systemic lupus, dilated cardiomyopathy leading to heart failure, Ehlers-Danlos Syndrome, arthritis and osteoporosis. After being able to run marathons and becoming gravely ill with only two weeks to live, Tasha decided to set up Chronically Marvellous to support others in a similar position with support groups that carers can also attend, counselling services and the provision of wheelchairs and electric scooters, as she understands the feeling of isolation.

As a mum, her children are her priority, especially as they also have non-visible disabilities, including autism and the genetic long QT wave syndrome. Balancing being there for them, with chronic pain, fatigue, and breathing difficulties, is hard work, but it also gives her true insight into what services to offer.

Support

• Chronically Marvellous 
• Instagram @chronicallymarvellous
• Facebook /chronciallymarvellous
• LinkedIn chronically-marvellous

Hosted by Chantal Boyle, Hidden Disabilities Sunflower.
 
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Find out more about the Sunflower by visiting the website hdsunflower.com

Music by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website