The MyAlzheimers Story Project
"The MyAlzheimers Story Project: Conversations from The Road", is a short collection of stories we collected during a road trip in June of 2019. We partnered with the Penn Memory Center, were sponsored by AARP, and we drove across the United states, visiting seven American cities, from Los Angeles to Philadelphia. The goal of the project is to equip scientists with the important stories they need, to create better care and work toward a cure. In each episode of our podcast, you will meet patients, families, advocates, clinicians and scientists - all sharing personal stories about their experiences with Alzheimer's and Dementia. This journey began with our own experience with Alzheimer's, which we share in the feature documentary, "Carpe Kilimanjaro: An Alzheimer's Story"; now available on Amazon Video. About 50 million people worldwide have some form of dementia and Alzheimer’s is the most common form of this brain disease. It doesn’t matter how old you are or where you live - you play a role in this story. This is OUR Alzheimer’s.
- Update frequency
- every day
- Average duration
- 23 minutes
- Episodes
- 7
- Years Active
- 2022
#1 How Your Story Helps Solve The Problem of Alzheimer’s
Dr. Jason Karlawish is Co-Director of the Penn Memory Center and author of "The Problem of Alzheimer's". We sat down with Jason during our stop in Philadelphia, Pennsylvania to find out why our colle…
#6 The Gut Brain Connection and Lessons in Living Longer
Dr. Robert P. Friedland shares a bit about his research related to gut-brain connections, as well as the importance of storytelling in the scientific journey.
Check out these links to learn more abou…
#2 Why Clinical Trials and The Scientific Journey Are So Personal
Anna Brocco, PharmD, MBA is Director of Operations & Clinical Research at Advanced Memory Research Institute of New Jersey. Jessica Langbaum, PhD is Director of the Alzheimer's Prevention Initiative…
#5 My Life As A 30-Something Caregiver
Veronica is a young caregiver from Texas and the Founder of Dementia Care Warriors. Elizabeth is a young caregiver from New Jersey. Both of these young women share their candid experiences about what…
#3 Diagnosed at Age 51: A Story of Servant Leadership
Jeff Borghoff was diagnosed with younger onset at the age of 51. During our stop in New Jersey, Jeff and his wife Kim shared their experiences with us and offer a candid look into the challenges they…
#4 Only You Can Help Prevent Financial Elder Abuse
Danny Hutcherson is a Financial Gerontologist and former US Marine. We sat down with Danny during our stop in Kentucky, to learn more about the growing issue of financial elder abuse and find out wha…
#7 The Future of Medicine Will Be Powered By Your Personal Story
Jason Moore, PhD. is now Chair of the Department of Computational Biomedicine at Cedars-Sinai Medical Center in Los Angeles, CA. At the time of this interview (2019), Jason was Director of the Penn I…