1. EachPod

29. Hurdle2Hope Stories: Meet Leah Alstin - Living With FA

Author
Teisha Rose
Published
Wed 24 Jul 2024
Episode Link
None

Does accepting the reality of your illness now mean giving up hope for your future?

 

Join us for another compelling Hurdle2Hope®️ Story as I chat with Leah Alstin, who navigates life with Friedreich's Ataxia (FA). In this episode, Leah opens up about her daily challenges and wins, offering insights into how acceptance can coexist with hope. 

We discuss how FA impacts Leah's life, the support she finds in her family, and her active role in advocacy, providing a rich perspective on living with a neuromuscular condition.

Like Leah, I have learned the crucial balance between accepting the present challenges of MS and stage 4 breast cancer and maintaining hope for my future. This conversation serves as a powerful reminder of our capacity to live fully and richly despite our circumstances.

 

If you LOVED the episode, make sure you share this on your Instagram stories and tag us @hurdle2hope and @being_leah.


KEY EPISODE TAKEAWAYS:

  • Understanding Friedreich's Ataxia: Leah offers an insightful explanation of Friedreich's Ataxia, detailing its impact as a genetic neuromuscular disorder and its progression over time.

 

  • Adapting to Physical Changes: Leah discusses how she has adapted to the physical challenges of FA, including the acceptance and use of mobility aids like walkers and wheelchairs to maintain her independence and safety.

 

  • Family Dynamics and Normalisation: Leah's children view the adaptations and challenges presented by her condition as normal, reflecting the supportive and adaptive environment within their family.

 

  • Advocacy and Community Engagement: Leah is actively involved in raising awareness about Friedreich's Ataxia, participating in community events and initiatives as an ambassador, which helps educate others and support those newly diagnosed.

 

  • Living with Hope and Resilience: Despite the uncertainties of FA, Leah maintains a hopeful outlook, focusing on living a fulfilling life and embracing future possibilities, which inspires others in similar situations.


SHOW RESOURCES

Send Teisha a text message ❤️🧡💚

Unexpected hurdles interrupt all of our lives. It is how you respond that will define your experience.

To find out how Hurdle2Hope can support you or your organisation please visit hurdle2hope.com.

I would love to connect with you, Teisha.


Also, are you following @hurdle2hope on social media... I would love to see you there!

Instagram
Facebook
LinkedIn

Share to: