The gift of time, an interview with Kerry Walsh

What do you do, when you have been given a life expectancy of 5 years?

For most people the answer is give up, but our guest today is turning 28 in October and continues to overcome adversity.

She has shared her Inspirational life story in her book , Finding my Feet by Kerry Walsh check out her book below:

https://www.kerrywalshtrust.co.za/finding-my-feet/

Join us in celebrating Kerry, a true-life expectancy miracle story and her quest for accessibility, connection and support for individuals with rare diseases in South Africa

Kerry’s Instagram link is below

hhttps://www.instagram.com/kmotivationsa?igsh=NTc4MTIwNjQ2YQ==ttps://www.instagram.com/kmotivationsa?igsh=NTc4MTIwNjQ2YQ==

This conversation explores the challenges faced by individuals with disabilities, particularly focusing on spinal muscular atrophy. Kerry shares her personal journey, the importance of awareness and education regarding accessibility, and the need for better communication in healthcare. The discussion also touches on the significance of community support, the process of writing a book, and finding joy amidst challenges. Ultimately, it emphasizes living in the present and embracing opportunities for growth and learning.

Takeaways.

• Kerry lives with spinal muscular atrophy, a rare genetic disorder.
• Awareness and knowledge about disabilities are lacking in society.
• Moaning about challenges does not lead to solutions.
• People are often scared of change regarding accessibility.
• Living with a disability requires extra steps in daily life.
• Open communication is essential in healthcare settings.
• Advocacy creates a sense of community and support.
• Writing can be a cathartic experience and a way to share one's story.
• Living in the present and embracing opportunities is crucial for personal growth.

• Navigating Burnout and Disability
• The Journey of a Disability Advocate

• "People are scared of change."
• "Moaning about it gets you nowhere."
• "Be less in a hurry."

Chapters

00:00 Introduction to Kerri's Journey

01:36 Understanding Spinal Muscular Atrophy

03:32 Challenges of Accessibility in South Africa

05:43 Navigating Social Interactions and Awareness

09:20 Experiencing Life from a Different Perspective

10:53 Improving Communication in Healthcare

14:05 Advocacy and Community Support for Rare Diseases

15:05 Finding Joy in Daily Life

16:19 The Journey of Writing a Book

18:30 Lessons Learned from Adversity

20:08 The Importance of Rest and Self-Care

22:34 The Value of Sharing Experiences

25:27 Reflections on Personal Growth

26:49 Advice to Younger Self

27:45 Embracing Opportunities for Growth

28:32 lifestyle-intro-low-short.wav

28:42 Welcome to the Burnout Recovery Club

28:56 Connecting with the Community

29:01 Exploring the Role of Mothers in Society