In this episode, Tosan and Moyo sit down with Ufuoma, founder of NotJustYou, a Sickle Cell Support Organization dedicated to supporting individuals and families affected by sickle cell disease. Diagnosed with sickle cell at age two and battling it for 16 years, Ufuoma shares her inspiring journey and how it led her to create a platform for community and advocacy. The conversation dives into key topics like navigating the healthcare system as a Black woman, the importance of self-advocacy, and how to find support when facing health challenges. Ufuoma also shares practical ways to better support people in our communities living with chronic illnesses.
This episode is a must-listen for anyone looking to learn, empathize, and make a difference. Tune in for an inspiring and insightful conversation!
TIMESTAMPS:
00:00 - 02:55 (Episode and Guest Introduction)
02:55 - 12:10 (Screentime and Headlines Segment- catch up/social media/pop culture)
12:10 - 24:05 (Get to know Ufuoma's story, and her journey to founding her non profit organization)
24:05 - 35:40 (Going through the health care system as a black woman, and what does advocacy look like?)
35:40 - 43:30 (Emotions that arise when battling a chronic illnesses)
43:30 - 48:00 (Finding community and support)
48:00 - 57:20 (practical ways to better support people in our communities living with chronic illnesses)
57:20 - 1:02:00 (How Ufuoma's journey has changed her outlook on life)
1:02:00 - 1:06:55 (Outro: How to support notjustyou, and where to find Ufuoma)
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Intro and Outro Music: FASSounds/Pixabay
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