Q&A - 2024 Nano-rare Patient Colloquium Recap

Join Stan Crooke, n-Lorem founder, CEO, and host of the Patient Empowerment Program Podcast, alongside Amy Williford, Sr. Director of Communications and Donor Relations, for a special episode.

In this post-colloquium Q&A, Stan recaps the 2024 Nano-rare Patient Colloquium and the progress n-Lorem has made as the organization nears its 5-year anniversary, shares his candid reflections on the event, and dives into additional thoughts and questions that weren’t covered.

Do you have additional questions? Email [email protected].

Question Bank:

1. 2:15 How do you think the event went this year?


2. 6:05 Were observations of benefit expected in patients so quickly? 


3. 9:47 What do you expect the number of patients treated to be next year?


4. 10:57 Do you have a message to supporters?


5. 12:30 Were there any disappointments from the colloquium?


6. 13:21 What are the most important things that n-Lorem has learned this year? 


7. 16:13 Do you think n-Lorem’s processes will be outlined every year at the event?


8. 18:05 How is AI incorporated at n-Lorem?


9. 19:10 Does your recently announced deal with GondolaBio reflect the sustainability strategy discussed at the event?


10. 20:53 n-Lorem is celebrating 5 years in 2025. Did you expect the foundation to be where it is today?


11. 21:28 Does n-Lorem plan to expand into Europe and elsewhere?

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