MyFSHD Rare Disease Day with Dr. Ryan Wuebbles, FSHD patient and neuromuscular disease researcher.
- Author
- Peter L Jones, PhD
- Published
- Fri 25 Feb 2022
- Episode Link
- https://podcasters.spotify.com/pod/show/peter-l-jones/episodes/MyFSHD-Rare-Disease-Day-with-Dr--Ryan-Wuebbles--FSHD-patient-and-neuromuscular-disease-researcher-e1eu2a1
Dr. Peter Jones sits down with Dr. Ryan Wuebbles to discuss his journey with FSHD first as a patient and now as a researcher. Covers some FSHD basics, research approaches, and how you can be the best advocate for FSHD.
