Introducing another episode and another Voice of the Mortal And Strong 2024 campaign. This episode we speak with the lovely soul that is Sue. Sue is such a gentle soul and provides a real and honest insight into living with chronic pain as she was diagnosed with Trigeminal Neuralgia two years ago. Trigeminal Neuralgia is an incurable condition whereby one of the nerves within the face causes intermittent attacks of pain. Nerve pain can be immensely debilitating, and Trigeminal Neuralgia has historically had a very unfortunate nickname within the patient community and medical community - known as the 'Suicide Disease' owning to a the disease having a stigma associated with it because the severity of pain leading to mental health problems for lack of a cure. Sue talks candidly about her resentment of such stigma, as it instantly detracts any hope when given the diagnosis. However Sue has a very pragmatic view; seeking alternative therapies and distracting techniques to help cope with the daily chronic condition. Sue is a lovely example of someone wanting to share their voice to advocate for change, reduce stigma and provide support and awareness.
Mortal and Strong is a campaign shining the spotlight on women facing their own mortality - those affected at a young age by a life changing illness or disease. 100 artworks produced by artists across the country along with a powerful photography series ‘Scars of Gold’ inspired by kintsugi. The voices will share their stories through the podcast released bi-weekly. Through the project Mortal And Strong will be featuring and collaborating with up to 20 chosen charities that are linked with the topics discussed in the project - to raise awareness of their work, fundraise for them with our exhibition and signpost people to right places for support.
Founder & concept - Dr Liz Murray
Podcast Presenters for this episode - Dr Liz Murray & Laura Middleton-Hughes
With thanks to Norfolk Farmhouse for providing the venue for this episode.
Photographer Sammy Weston
For more information on support available for these issues discussed in todays episode, including direction to medical information, visit our website. This episode is not intended as specific medical advice, always see your own GP/physician if you have any concerns regarding your own health.
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