Introducing the latest wonderful Voice to share with us her experience of a chronic illness - Fiona G. Fiona was born with a rare (1 in 1 million) genetic disorder which causes an excess of tumours in the bones and tendons and has meant Fiona has had leg lengthening surgeries and debunking surgeries in her hands since the age of 4. Diagnosed at just 9 months old Fiona has only ever known a life with a chronic health condition and shares how the lack of mental health support as an adolescent impacted her as an adult. A really important and powerful interview discussing what disenfranchised grief is, how important it is to recognise the need for mental health support through a life changing diagnosis. Fiona's condition then changed and was diagnosed with Sarcoma and once again was reminded of her mortality and shares how she does live with a 'heightened realisation of what it is to be mortal' but that having her condition has given her values and taught her where to find joy.
Thank you to Fiona for being another wonderful and honest Voice in the Scars of Gold campaign. Scars of Gold is a health awareness campaign sharing the voices of 100 women facing their mortality at a young age with life changing or incurable health conditions. Produced by the charity @mortalandstrong (No. 1209448)
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