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Living With Cystic Fibrosis - Podcast

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

Self Help Self-Improvement Innovation Documentary Society Health & Fitness Science Mental Health Culture Society & Culture Education
Update frequency
every 7 days
Average duration
38 minutes
Episodes
167
Years Active
2019 - 2025
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MRI Fingerprinting: Revolutionizing  Care for Rare / Dr. Chris Flask

MRI Fingerprinting: Revolutionizing Care for Rare / Dr. Chris Flask

What if a scan could do more than show you a picture, what if it could tell you a story about what’s happening inside a child’s body, in real time?

That’s exactly what Dr. Chris Flask is working to ma…

00:36:28  |   Mon 01 Sep 2025
Singing, Acting and Advocacy: It's in Julia Rae's DNA!

Singing, Acting and Advocacy: It's in Julia Rae's DNA!

“I always say that singing and performing was as much a part of my DNA as cystic fibrosis.” Julia Rae

From the moment Julia Rae could speak, she was singing, and from the moment she could dream, she w…

00:39:44  |   Mon 18 Aug 2025
Sophie Holmes: 36 marathons in 36 days

Sophie Holmes: 36 marathons in 36 days

Never Just Surviving: Sophie Holmes on Running 36 Marathons with Cystic Fibrosis

Despite a schedule packed with training, advocacy, and breaking world records, Sophie Holmes of the U.K. always makes t…

00:36:59  |   Mon 04 Aug 2025
Advocacy in Action: From the Front Lines

Advocacy in Action: From the Front Lines

 

“It’s an honor to be an advocate,” says Laura Bonnell, founder of The Bonnell Foundation. “We are the government—people are. If we don’t fight for fair laws that help the people they’re meant to ser…

00:52:28  |   Mon 21 Jul 2025
The power of yes: it saves lives (Mike Walters and Jason Vandiver)

The power of yes: it saves lives (Mike Walters and Jason Vandiver)

We have a powerful conversation about dedication, innovation, and impact in the cystic fibrosis community in this podcast. I’m joined by two incredible guests from MVW Nutritionals: Mike Walters and …

00:47:00  |   Mon 07 Jul 2025
How to provide lung health everyday

How to provide lung health everyday

Substack is where I discovered Dr. MeiLan Han! I was browsing through and was pleasantly surprised to read an article, and learn that she wrote a book called, Breathing Lessons. And to top it off, sh…

00:40:53  |   Mon 30 Jun 2025
Personalized Mission: The Rosenau Family Foundation story

Personalized Mission: The Rosenau Family Foundation story

"Oh, the people you’ll meet, and the places you’ll go..."
That classic Dr. Seuss line couldn’t have been more true when I found myself at a rare disease conference, taking with Dr. Gabriel Cohn. A qui…

00:34:10  |   Mon 16 Jun 2025
Costco to Connection: Magazine to Mic with Michelle Glogovac

Costco to Connection: Magazine to Mic with Michelle Glogovac

From Costco to Connection: Podcast Advice That Changed Everything

When I spotted a feature on podcasting in The Costco Connection, I was excited. When I saw Michelle Glogovac featured? I knew I had to…

00:47:44  |   Mon 02 Jun 2025
Voices of Care: A Live and Unfiltered Conversation

Voices of Care: A Live and Unfiltered Conversation

Live from Mix and Mingle Education Day: A Powerful Conversation with Caregivers

In this deeply moving live episode recorded at the Mix and Mingle Education Day, we brought together a powerful group of…

01:16:39  |   Mon 26 May 2025
Obesity in CF: A New Challenge in a Healthier Future

Obesity in CF: A New Challenge in a Healthier Future

Cystic Fibrosis and obesity?  Until recently this has not been a topic of conversation for the CF community. The reason for obesity in the CF community is better health and longer lives, so the conce…

00:38:12  |   Mon 19 May 2025
70 years strong: The Luanne McKinnon story.

70 years strong: The Luanne McKinnon story.

A 70-year-old person with cystic fibrosis. It’s a phrase that wasn’t just uncommon a few decades ago—it was virtually unheard of.

When Luanne McKinnon was diagnosed in 1969 at just 13 years old, docto…

01:03:30  |   Mon 12 May 2025
Live Fearlessly: Jacob Venditti

Live Fearlessly: Jacob Venditti

Eight miles. Two friends. One cause.

This episode now holds even deeper meaning. Jacob Venditti, who has since passed away from complications of cystic fibrosis (August 16th 2025), shares his story wi…

00:31:54  |   Mon 05 May 2025
From Bulky to Breakthrough: The Future of Airway Clearance

From Bulky to Breakthrough: The Future of Airway Clearance

From Clunky to Cutting-Edge: The Evolution of Airway Clearance with Nicole Dunn

When our daughters first received their vest machines, they felt like they weighed a hundred pounds and had to be plugge…

00:27:37  |   Mon 21 Apr 2025
Milestones, Medicine, and the CF Community with Siri Vaeth

Milestones, Medicine, and the CF Community with Siri Vaeth

CFRI’s Executive Director, Siri Vaeth is sunshine to me. She’s a dear friend.

We met after Siri took on her role with the Cystic Fibrosis Research Institute. I consider Siri a dear friend, and a mento…

00:53:36  |   Mon 07 Apr 2025
Aaron Trumm: living his best life!

Aaron Trumm: living his best life!

I love that I was able to bump into Aaron Trumm via an email.  He reached out to check in about our scholarship program for college.  We only award grants to undergrad students, but I was intrigued b…

00:45:23  |   Mon 24 Mar 2025
Bob  Coughlin, CF Dad: from Congress to Science

Bob Coughlin, CF Dad: from Congress to Science

CF Dad Bob Coughlin see's a cure in the future for his son, and all of our kids. His high energy in this podcast is contagious. 

In this conversation, Laura Bonnell and Bob Coughlin discuss the journe…

00:45:50  |   Mon 10 Mar 2025
Michael Armstrong, wise beyond his years

Michael Armstrong, wise beyond his years

Michael Armstrong is a 25-year-old pre-law student. He loves to read, paint, play card games and video games. He was diagnosed with CF as an infant. We’re going to talk about his CF journey and how l…

00:26:45  |   Mon 24 Feb 2025
Life after the death of a child to CF

Life after the death of a child to CF

If you lose a child to CF, what does that do to parents? To their identity? And their place in the CF community.  These are hard discussions to have, but for a couple years now Peggy Hawkins has want…

00:42:53  |   Mon 10 Feb 2025
Advocate, Amanda Boone

Advocate, Amanda Boone

Saving yourself by way of advocacy. Living with cystic fibrosis podcast host, Laura Bonnell talks to CF advocate, Amanda Boone about the fight that grew from a threat to her medications in Colorado. …

01:05:19  |   Mon 27 Jan 2025
BreatheStrong CF

BreatheStrong CF

I have known Becky Penuel for many years. Becky used to run Miles for cystic fibrosis and then merged her nonprofit with Brian Callanan’s nonprofit, CF Life Fitness. After the merger, the nonprofit n…

00:44:09  |   Mon 20 Jan 2025
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