Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire
What if a scan could do more than show you a picture, what if it could tell you a story about what’s happening inside a child’s body, in real time?
That’s exactly what Dr. Chris Flask is working to ma…
“I always say that singing and performing was as much a part of my DNA as cystic fibrosis.” Julia Rae
From the moment Julia Rae could speak, she was singing, and from the moment she could dream, she w…
Never Just Surviving: Sophie Holmes on Running 36 Marathons with Cystic Fibrosis
Despite a schedule packed with training, advocacy, and breaking world records, Sophie Holmes of the U.K. always makes t…
“It’s an honor to be an advocate,” says Laura Bonnell, founder of The Bonnell Foundation. “We are the government—people are. If we don’t fight for fair laws that help the people they’re meant to ser…
We have a powerful conversation about dedication, innovation, and impact in the cystic fibrosis community in this podcast. I’m joined by two incredible guests from MVW Nutritionals: Mike Walters and …
Substack is where I discovered Dr. MeiLan Han! I was browsing through and was pleasantly surprised to read an article, and learn that she wrote a book called, Breathing Lessons. And to top it off, sh…
"Oh, the people you’ll meet, and the places you’ll go..."
That classic Dr. Seuss line couldn’t have been more true when I found myself at a rare disease conference, taking with Dr. Gabriel Cohn. A qui…
From Costco to Connection: Podcast Advice That Changed Everything
When I spotted a feature on podcasting in The Costco Connection, I was excited. When I saw Michelle Glogovac featured? I knew I had to…
Live from Mix and Mingle Education Day: A Powerful Conversation with Caregivers
In this deeply moving live episode recorded at the Mix and Mingle Education Day, we brought together a powerful group of…
Cystic Fibrosis and obesity? Until recently this has not been a topic of conversation for the CF community. The reason for obesity in the CF community is better health and longer lives, so the conce…
A 70-year-old person with cystic fibrosis. It’s a phrase that wasn’t just uncommon a few decades ago—it was virtually unheard of.
When Luanne McKinnon was diagnosed in 1969 at just 13 years old, docto…
Eight miles. Two friends. One cause.
This episode now holds even deeper meaning. Jacob Venditti, who has since passed away from complications of cystic fibrosis (August 16th 2025), shares his story wi…
From Clunky to Cutting-Edge: The Evolution of Airway Clearance with Nicole Dunn
When our daughters first received their vest machines, they felt like they weighed a hundred pounds and had to be plugge…
CFRI’s Executive Director, Siri Vaeth is sunshine to me. She’s a dear friend.
We met after Siri took on her role with the Cystic Fibrosis Research Institute. I consider Siri a dear friend, and a mento…
I love that I was able to bump into Aaron Trumm via an email. He reached out to check in about our scholarship program for college. We only award grants to undergrad students, but I was intrigued b…
CF Dad Bob Coughlin see's a cure in the future for his son, and all of our kids. His high energy in this podcast is contagious.
In this conversation, Laura Bonnell and Bob Coughlin discuss the journe…
Michael Armstrong is a 25-year-old pre-law student. He loves to read, paint, play card games and video games. He was diagnosed with CF as an infant. We’re going to talk about his CF journey and how l…
If you lose a child to CF, what does that do to parents? To their identity? And their place in the CF community. These are hard discussions to have, but for a couple years now Peggy Hawkins has want…
Saving yourself by way of advocacy. Living with cystic fibrosis podcast host, Laura Bonnell talks to CF advocate, Amanda Boone about the fight that grew from a threat to her medications in Colorado. …
I have known Becky Penuel for many years. Becky used to run Miles for cystic fibrosis and then merged her nonprofit with Brian Callanan’s nonprofit, CF Life Fitness. After the merger, the nonprofit n…