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Perspective from a Duchenne Mom and Healthcare (Spanish Episode)

Author
Aurora Flores
Published
Wed 01 Mar 2023
Episode Link
https://insightful-moments-my-vibe.simplecast.com/episodes/perspective-from-a-duchenne-mom-and-healthcare-spanish-episode-DvgZWr_Q

Welcome back to another episode of Insightful Moments: My VIBE, presented by PTC Therapeutics. On this episode, Aurora Flores, Patient Engagement Liaison at PTC, is attending the Akari Foundation workshop in Dallas, which was the foundation’s first hybrid workshop fully in Spanish for families affected by Duchenne Muscular Dystrophy. She is joined by Fabiola, a DMD mother and Psychotherapist. Fabiola found her calling in helping others after her son was diagnosed with DMD. She was motivated to pursue a degree in psychology and thanatology, which is a multidisciplinary field dedicated to better understanding of death, grief and loss, to help others cope with the pain of a terminal diagnosis. She joins Aurora to share her perspective as a mom and therapist for the DMD community. So join us for another thoughtful episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.

 

For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.

 

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