Advocating within the PKU Community

Welcome back to another episode of Insightful Moments: My VIBE, presented by PTC Therapeutics. In this episode, Paula Orandash attended the National PKU Alliance Challenge the Summit 2022 Conference in Vancouver where she spoke to many individuals affected by Phenylketonuria (PKU). PKU affects the body’s ability to metabolize proteins. It requires a strict monitoring of diet, but has many other challenges and nuances for those diagnosed with PKU and their loved ones. You’ll hear from Samantha, who advocates about the importance of diagnosis and symptom education for children with PKU, and runs a blog and an Instagram page to document her journey.  Our second guest is also named Samantha. Holding a Doctorate in Physical Therapy makes her the perfect person to tell us about the Medical Nutrition Equality Act. Join us for another great episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics. 

For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.

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