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Should Patient Authors Be Paid? Navigating Ethics, Equity, and Recognition

Author
ISMPP
Published
Tue 22 Jul 2025
Episode Link
https://www.ismpp.org/

Today, we dive into one of the most pressing and polarizing questions in medical publishing today: Should patients who contribute as co-authors be compensated?

Joining us are Veronica Porkess of UCB Pharma and Simon Stones of Amica Scientific, two voices at the forefront of patient engagement. Together, we'll explore the shifting landscape of patient authorship, unpacking the ethical dilemmas and practical challenges that shape how and when patient authors are compensated. From issues of equity and selection bias to questions of transparency and tokenism, this conversation challenges traditional thinking and asks: In a future that truly includes patients, what does fair recognition really look like?

To join ISMPP, visit our website at https://www.ismpp.org/ 

This episode is generously sponsored by Avalere Health.


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