1. EachPod

Coping, Denial or Both

Author
marcia doherty AKA Madeline
Published
Sat 26 Aug 2023
Episode Link
https://podcasters.spotify.com/pod/show/i-am-madeline/episodes/Coping--Denial-or-Both-e28hrt8

Where I attempt to puzzle out explaining some of my coping strategies. Also ombudsman update plus an article that includes me should be coming out soon update.

I talk about MS and ME briefly in this ep so here are some links about that:

viral origins of myalgic encephalomyelitis, some of the history of its abdication, it's relationships to MS and AIDS and particularly to Epstein-Barr which was the virus that got me
https://journals.plos.org/plospathogens/article?id=10.1371/journal.ppat.1011523#ppat.1011523.ref025

And this one draws distinct parallels between MS and ME and shows the seriousness and deadly nature of myalgic encephalomyelitis-
Myalgic encephalomyelitis/chronic fatigue syndrome and encephalomyelitis disseminata/multiple sclerosis show remarkable levels of similarity in phenomenology and neuroimmune characteristics | BMC Medicine | Full Text
https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-11-205

More info on MS and Epstein-Barr
Clonally expanded B cells in multiple sclerosis bind EBV EBNA1 and GlialCAM
https://www.nature.com/articles/s41586-022-04432-7

Gfm for those who want it https://gofund.me/cff39173

(Also bear with me guys as I try to find the perfect location for the microphone. I have to play with levels post recording when it turned out it was too close so I hope that's okay. I don't know have the energy or brain power to rerecord. Le sigh. It's hard to have the sound quality at the level that I want it to be while hanging off a cliff by a branch like a cartoon animal trying to be a magical Ted talk to drs, politicians, bureaucrats +now ombudsman, etc while also trying to navigate scarcity and illness. So I appreciate your forbearance💗. )

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