1. EachPod

Brutality of post-exertion symptom exacerbation due only to lack of supports

Author
marcia doherty AKA Madeline
Published
Tue 03 Oct 2023
Episode Link
https://podcasters.spotify.com/pod/show/i-am-madeline/episodes/Brutality-of-post-exertion-symptom-exacerbation-due-only-to-lack-of-supports-e2a45bt

I thought I would talk through post-exertion symptom exacerbation #pese while it was happening. I know that it's very hard for somebody who hasn't experienced it to really understand what it's like. The problem is I feel so fatigue cognitively impaired that I'm not sure how clear I was. But maybe that all into itself is an explanation. Also talk about a young person I met casually diagnosed with long covid without any instruction on The perils of overdoing and how you can permanently disable yourself.

I do currently have enough money to make it to the end of next week but I'm really struggling with that daily and weekly fight to survive. Having pushed myself to try to clean because I'm really scared about my tenancy being at risk and the death sentence that anyone attempting to be force me into a care home would represent, it's really emotionally crushing me.

I'm still aimed at getting to thanksgiving, and hoping that help bouys my spirit but it will make the post exertion symptom exacerbation fall off a cliff. And I don't currently have the resources to get enough treatments to get it to restabilize. And that doesn't begin to address having enough money to have enough treatments to have enough energy to clean my apartment. And around and around I go on the Merry-Go-Round of never having enough supports either on my disease or PWD assistance in general

RICHOCHET article
https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty

Gfm
https://gofund.me/cff39173

Email address, BUT not the one for the e-transfer cuz again I haven't been able to figure out how to set that up myself, but the way to reach me to give you the transfer info that liza set up when she set up the GoFundMe [email protected]

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