1. EachPod

Special Needs Spotlight: Chronic Illness with a Genetic Diagnosis of FAN while Single Parenting, with Erin Pieper

Author
Erin Pieper, Steve Keene, Katie Keene, Steve and Katie Keene
Published
Wed 08 Jun 2022
Episode Link
https://family-success-secrets.simplecast.com/episodes/secrets-of-single-parenting-chronic-illness-entrepreneurship-and-genetic-diagnosis-fan-with-erin-pieper-_OZnjcOB

This week our hosts, Steve and Katie Keene, interview Erin Pieper.

Erin is the author of her memoir, Dismantling the Disability: My Uphill Battle With Friedreich’s Ataxia. Erin is a single mom who advocates for finding a treatment for Friedreich's Ataxia (FA), a rare disease she is faced with. She has participated in many fund raising events, both near and far and has taken part in more than five Research Trials at the University of South Florida. Erin is the designer of "FAN", a t-shirt campaign that advocates that the purchaser / wearer is a fan of spreading awareness and support for those diagnosed with FA. She spends a lot of time overcoming the struggles of FA in order to be an involved mom as possible and making the world a kinder place.

Connect with Steve and Katie:
podcast.familysuccesssecrets.com
linktr.ee/familysuccess

Connect with Erin:
www.erinkpieper.com
IG: @peepr
FB: Erin Pieper
Book:

 

Dismantling the Disability: My Uphill Battle with Friedreich's Ataxia|Paperback

 

Share to: