The Gift of Life: Organ Donation, Food Allergy Awareness, Child Loss & Legacy with Maryam De Groef

Maryam De Groef on child and sibling loss, organ donation, food allergy awareness, faith, and the many ways her daughter, Zeynah, lives on.

In this heartfelt and powerful episode of the Grief and Light podcast, host Nina Rodriguez speaks with grief educator, somatic practitioner, and mother Maryam De Groef about the unimaginable: the sudden loss of her 9-year-old daughter, Zeynah, to an anaphylactic reaction caused by a severe food allergy in 2023.

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Maryam shares the deeply personal journey of navigating profound grief, witnessing her surviving child process sibling loss, and the life-affirming decision her family made opting for organ donation—a decision that has saved and transformed the lives of others, with ripple effects that may span generations.

Together, they explore the urgent need for greater awareness around food allergies and anaphylaxis, especially in children, as well as the power of cultural sensitivity in medical care, and the often-overlooked grief of siblings left behind. 

Maryam also speaks to the role of faith, nervous system healing, and her work guiding others through trauma with somatic tools like breathwork, reiki, grounding, and emotional regulation practices.

This conversation is a tender and inspiring reminder that legacy isn’t just what we leave behind, it’s also what we give forward.

Key Takeaways:

• Food allergies can be fatal—awareness, preparedness, and education save lives.
• Grief affects the whole family, including siblings, who often go unseen in their pain.
• Organ donation is an act of profound love, capable of impacting dozens of lives now and in the future.
• Cultural and spiritual sensitivity in how loss is communicated matters deeply in trauma-informed care.
• Embodied healing practices like breathwork, grounding, and nervous system regulation, can offer relief and resilience through overwhelming grief.
• Legacy can ripple for generations, transforming pain into purpose and continued life.

Grief Support Resources for the Road:

1. Grief Tending Toolkit
2. Access our online community

Mentioned in this episode:

• Trillium Gift of Life Network
• Red Sneakers for Oakley
• Natasha Allergy Research Foundation

Guest: Maryam de Groef

• Instagram: @maryamdegroef
• Personal website

Hosted by: Nina Rodriguez

• Creator of Grief and Light, Grief Guide
• Learn more: griefandlight.com
• Instagram: @griefandlight

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