Meet Amazing with Medical Mama and Podcast Hostess of When Autumn Comes

Even if you aren’t a rare disease medical mama, YOU NEED TO LISTEN.  In this episode, whoa, wow, what??  Susan is the podcast hostess of When Autumn Comes.  She is also the medical mama of 2 children with the extremely rare form of mitochondrial disease.  In our discussion today, she gives voice to the struggles and the joy of raising children with a life expectancy of 2-5 years.  I am so honored to talk with her.  We get into issues like:

·        How long does it take to get to a place of “okay-ness” with everything you hear and have to deal with after a diagnosis?

·        Pumping, breast feeding, and the things we can “somewhat” control when there is so much we can’t control.

·        How do we deal with the things that separate our children from the perceived “typical/normal” child?

·        How do we live!!!???  How do we all continue to live with children that are in the process of closing this chapter?

·        What would you really want for your child and your life as a family? What type of your journey would you change?

We cover this and so much more! 

Enjoy! 

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