Ep 7: Acceptance with Rina and Lauren (turning the tables on our hosts!)

It’s our series 1 finale and time to turn the tables on our hosts, as Lauren and Rina are interviewed by our first ever podcast guest, the wonderful Genevieve. They discuss their experiences of pregnancy, birth and diagnosis with some key moments of acceptance and internal and external influences that helped. From language to being kinder to oneself, we discuss modifying parenting expectations and learning to not give a shit about what others’ think.

For our 3 hosts today (and most of the podcast team), acceptance often creeps in, over time. Of course, there are setbacks along the way, with an array of examples and themes discussed. As parents of disabled children, some days are hard and some days are great. Over time, Lauren, Rina and Gen have learned acceptance and the peace that goes with it, which is invaluable in helping get through shittier times and giving you perspective. 

Content Warnings

Diagnoses Stories

Possible Death in Early Infancy 

Misdiagnosis

Mental Health

Disability & SEN Language

Birth Stories

Neonatal Intensive Care Unit Stories

Resource Links 

NHS Tracheostomy

A tracheostomy is an opening created at the front of the neck so a tube can be inserted into the windpipe (trachea) to help you breathe.

Pierre Robin Sequence - Health Research Authority

Pierre Robin Sequence (PRS) is a condition present from birth with three main features: a small lower jaw (micrognathia), backward-positioned tongue (glossoptosis), and defect of the roof of the mouth (cleft palate). Together, these abnormalities can cause airway obstruction and breathing or feeding difficulties.

Chromosome 18q -

https://www.chromosome18.org/18q/distal-18q/

https://www.rarechromo.org

Noonan Syndrome -

https://www.noonansyndrome.org.uk

As Gen mentions at the start of the episode, Lauren is running the London Marathon to raise money for Great Ormond Street Hospital - If you can afford to, and want to make a donation, here is her just giving page:

Lauren Fenton is fundraising for Great Ormond Street Hospital Children's Charity (justgiving.com)

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