Episode 234 - Janet Marin, Disability Awareness Advocate

Janet Marin is an example of someone embracing themselves fully and living
their best life. If you follow her on Instagram @jay_marinnn, you know
that’s true. She is a T1D that also lives with gastroparesis, vitiligo,
neuropathy, fibromyalgia, and is open about all of it along with her mental
health journey. Rob and Eritrea talk to her about all of that and more:

* T1D diagnosis at young age of six

* Sick days and non-sick days when you live with chronic illness

* Being bilingual and the translator between your doctors and your
parents

* Health equity and getting translators in the room to serve education
in the language needed

* Autoimmune responses like vitiligo

* Gastroparesis diagnosis in 2017 and the lack of information around it

* Gastroparesis flare-ups and the effects of malnourishment on her body

* The support of the chronic illness online community especially around
having a feeding tube

* Advice for those newly diagnosed with a rare disease or a rare
disease alongside T1D

* The isolation that you can feel in these diagnoses or complications

* Eradicating shame and guilt-causing language especially from
healthcare professionals

We want to hear from you. Send your questions, comments, queries, and
general diabetes concerns to THE MAILBAG at
[email protected]!