Navigating A Scary Diagnosis with Dr Edward Rogoff

If you or someone you love has ever faced a health scare, this is a conversation you won’t want to miss. My guest today is Dr. Edward G. Rogoff, an accomplished educator and advocate whose personal journey is nothing short of extraordinary. Diagnosed with hemophilia as a child, Dr. Rogoff faced a lifetime of uncertainty—until a liver transplant in adulthood led to an unexpected cure. His experience sparked a lifelong commitment to patient advocacy, organ donation awareness, and reshaping how we approach chronic illness.

He’s served on the boards of the Hemophilia Association of New York since 1980 and LiveOnNY, the major organ donor organization for the New York City metropolitan area, and now he’s sharing his wisdom in his new book: "Scary Diagnosis: Navigating Fear, Finding Strength, and Securing the Health Care You Deserve."

In this conversation, we explore the power of building the right medical team, managing uncertainty, denial, having tough conversations, staying resilient and how to not let a scary diagnosis overtake your life and keep it all in perspective.

TRANSCRIPT

Scary Diagnosis Navigating Fear, Finding Strength, and Securing the Health Care You Deserve 

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