Episode 115 | Megan’s Story: A Son with Williams Syndrome

Today I’m talking with Megan, who is the mother of three wonderful children. Her first was born with a rare genetic condition called Williams Syndrome. They did not discover this syndrome until he was five months old, and you will hear in her story how those first five months felt like five years. Megan is also a social worker, and she has developed a program that we will talk about at the end of the interview.

In this episode, we talk about…

[1:53] Megan’s family

[3:24] Williams Syndrome

[4:30] Megan’s pregnancy and delivery with her son

[6:21] Getting a diagnosis of Williams Syndrome

[13:45] Feeling lonely after getting the diagnosis of Williams Syndrome

[21:24] Family support and coping as parents of a child with special needs

[23:36] Living with Williams Syndrome

[26:52] How Megan takes care of herself day to day

[30:03] An update on Megan’s son and what he has taught her

[32:43] Tulip Families: The program Megan developed for families navigating disability and neurodiversity

CONNECT WITH MEGAN

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