Bringing Sickle Cell Disease to Life
This podcast, hosted by Dr. Wally Smith of Virginia Commonwealth University, features interviews of diverse leading experts including researchers, physicians, and individuals living with the disease, exploring the history of the disease, the global impact and need for additional providers, disparity and bias in sickle cell disease, and promising news regarding the management and treatment of sickle cell disease. Learn about the past, present and future of sickle cell, and join us in the fight for sickle cell disease survival!
- Update frequency
- every 6 days
- Average duration
- 20 minutes
- Episodes
- 14
- Years Active
- 2022
Follow Your Heart
The final episode of Bringing Sickle Cell Disease to Life explores the concepts of putting research into practice, implementation science, and advocacy. Dr. Wally Smith hears from sickle cell pioneer…
Connections Across the Globe
Sickle cell disease (SCD) affects people all over the world. In this episode, Dr. Wally Smith interviews Dr. Russell Ware, an SCD provider and researcher who assembled an international team of expert…
Everyone Has a Place
Not enough hematologists specialize in sickle cell disease (SCD) to reach all the people who need care. Host Dr. Wally Smith talks with Dr. JJ Strouse about outreach programs he has developed to reac…
Home Is Where the Care Is
Researchers, patients, and providers discuss the importance of a quality “medical home” for people living with sickle cell disease (SCD). ASH Research Collaborative Community engagement Manager Shaun…
Fighting Racism From the Lab Bench to the Patient Bedside in Sickle Cell Research
Translational research discoveries have been critical in improving care for people living with sickle cell disease (SCD). In this episode, Dr. Courtney Fitzhugh shares her passion for translational r…
Improving Emergency Care: The Painful Truth
Emergency departments (ED) are inevitable for people living with sickle cell disease (SCD). Many clinicians in the ED, however, misunderstand the disease and perceive patients as drug seekers. This…
Waiting for Mercy
Structural racism and implicit bias are prominent in the care of people living with sickle cell disease (SCD). Dr. Marilyn Hughes Gaston shares how she unwittingly showed bias early in her career and…
Chwechweechwe: Relentless Perpetual Chewing
Severe pain, which is the most common complication for people living with sickle cell disease (SCD), severely affects their quality of life. This episode starts with a passage about the excruciating …
Making the Leap From Physician to Researcher
In the final episode of Season 1, Dr. Courtney Fitzhugh encourages medical students interested in sickle cell disease to get involved and reach out to a mentor. She shares her journey to becoming a p…
Finding a Purpose Through Sickle Cell Disease Research
In this episode, Dr. Betty Pace explains her path to conducting research in sickle cell disease. As a clinician and researcher, she shares how she was able to bring the clinical perspective to the la…
Ubuntu: I Am Because We Are
Young individuals living with sickle cell disease eventually age out of the pediatric units and struggle as they transition to adult care. In this episode, we hear from Kyle, a person living with sic…
An Unpredictable Childhood
In the past, children with undiagnosed sickle cell disease were at risk of dying in as little as nine hours of sepsis. In this episode of Bringing Sickle Cell Disease to Life, we hear more from Kyle,…
Progress Over Decades: We’ve Come a Long Way
In the first episode of Bringing Sickle Cell Disease to Life, Kyle Smith, an individual living with sickle cell disease and a leader in community advocacy, will share his story with us. Our host Dr. …
Coming Soon: Bringing Sickle Cell Disease to Life
Coming soon: This podcast, hosted by Dr. Wally Smith of Virginia Commonwealth University, features interviews of diverse leading experts including researchers, physicians, and individuals living with…