Let’s Shine a Light on Rare Diseases: When it's My Fault

We continue our series Shine a Light on Rare Diseases, and this week we speak to Madeline Cheney @the_rare_life about her adorable son, Kimball, and about living with grief and guilt as a mother and genetic carrier. Madeline is the leader of the Utah @wearebravetogether support group, so please do reach out if you live in the area and want to join the community. She is also the creator and host of The Rare Life, a podcast about parenting children with rare medical conditions. Her gracious, vulnerable words will inspire and comfort any mother carrying similar questions; you are not alone!

Brave Together Podcast is a resource produced by We Are Brave Together, a global nonprofit that creates community for moms raising children with disabilities, neurodivergence, or complex medical and mental health conditions. The heart of We Are Brave Together is to preserve and protect the mental health of caregiving moms everywhere.

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Feel free to contact Jessica Patay via email: [email protected]

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