Bri: CHD; Ebstein's Anomaly

Bri's daughter Caroline was diagnosed with a rare form of CHD called Ebstein’s Anomaly. Living in Sacramento, her and her husband moved to Stanford to ensure she received the best possible care. After Caroline was born, she spent 27 days fighting for her life until ultimately passing away peacefully in her mother's arms. Among her diagnoses it was also found that she had Pallister-Killian Syndrome (PKS) after she was born. 

Bri talks about this journey. From finding out about her daughter's rare disorder, to how to proceed, to giving birth to her daughter alive, to then deciding to do surgeries and the days she lived in the NICU. Bri walked away with zero regrets, something a lot of loss momma's wish they could do. 

Our hope is that this story finds someone who needs to hear it. Bri would love to connect with anyone who can resonate with Caroline's story or needs guidance navigating their own.  But no matter what your experiences are, it helps to hear about how to cope, how to hold onto hope, and how you are anything but alone.

Information on Ebstein's Anomaly: HERE

To connect with Bri, find her on Instagram at @brihansen 

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NOTE: I am not a doctor or a therapist. The views of my guests are not always reflective of my own.  I am just a real life loss mom describing her experiences with life after loss. These are my experiences, and I'm putting it out there so you feel less alone. Always do your own research and make informed decisions! For more REAL TALK about baby loss and grief, hit subscribe to be notified when another episode drops! Support the podcast and shop the store!  At a Total Loss Shop  Instagram @thekatherinelazar  Youtube: @thekatherinelazar Email: [email protected] Website: www.katherinelazar.com  Some helpful resources: https://countthekicks.org/ https://www.measuretheplacenta.org/ https://www.pushpregnancy.org/ https://www.tommys.org/  Local to Atlanta: https://www.northsidepnl.com/