E17: Help is on the Way

In this heartfelt conversation, Lara and Mary return after a year-long pause to reflect on the transitional journeys they’ve each faced as ALS caregivers. Both of their husbands, coincidentally named Tom, served as veterans and live(d) with ALS—Tom Garey, who passed more than three years ago, and Tom Ward, who continues to fight the disease.

Lara shares how this past year has brought her moments of joy, both in everyday life and in unexpected ways, offering hope and resilience in life after caregiving. Mary opens up about the increasing challenges of being the sole caregiver for her husband and how the addition of skilled care a few afternoons a week has begun to transform her days. With this support, she is rediscovering pieces of herself, reclaiming her own identity.

Together, Lara and Mary speak candidly about grief, growth, and the relief that comes when help is finally on the way. Their conversation is a poignant reminder that caregivers are not alone, and that seeking support can create space for both healing and renewal.

Caregiver Resources

ALS-Specific Resources:

• The ALS Association – Support, advocacy, and caregiver resources.
• Team Gleason – Innovative technology and support for those living with ALS.
• I AM ALS - Advocacy, peer support, and resources for ALS families.
• Les Turner ALS Foundation - Education, support groups, and direct care services.

General Caregiver Resources:

• Family Caregiver Alliance - Resources, education, and advocacy for caregivers of all backgrounds.
• National Alliance for Caregiving – Research and resources for family caregivers.
• Caregiver Action Network – Free education, peer support, and tools for caregivers nationwide.
• Elizabeth Dole Foundation - Focused on supporting military and veteran caregivers.

Lara and Mary welcome listeners to reach out to them with feedback, requests for topics to be discussed on the podcast, and to get a guest!

Lara: [email protected]

Mary: [email protected]