Real Lives: Understanding Down Syndrome and The Perfect Gift

Let's Understand Down Syndrome

Understanding Down Syndrome is important for everyone, not just those families touched by it.  In this episode I speak to Sinead Fidgeon, co-founder of The Perfect Gift Charity.  Sinead's gorgeous little girl Grace was born with Down Syndrome 7 years ago.  Furthermore we speak about her amazing charity The Perfect gift.  Amazingly, Sinead somehow finds the time to send new mums whose children have Down Syndrome a lovely gift basket which includes an invitation to Down Right Perfect, an online support group started by Rachel O'Neill.

The Perfect Gift and Down Right Perfect

Down Right Perfect and The Perfect Gift work together to provide a holistic and positive support network to new mums.  Many mums know how invaluable online parenting groups can be.  This is especially true if your child has an uncommon congenital chromosomal abnormality like Down Syndrome.  Sinead explains how it is nice to speak to other mums who are in the same situation and requiring the same support.  Understanding Down Syndrome prognosis and quality of life issues is completely essential for a full understanding of the wonderful opportunities that lie ahead for your child.

What I got from this episode

I am in awe of Sinead and the incredible work she does while also parenting 5 kids.  For me, her actions represent the best type of humanity.  Like any other condition, people can be afraid to comment or offer support.  This is usually down to fear of saying the wrong thing or being unintentionally rude or ignorant.  I can't think of a better reason why all mums, not just those of children with Down Syndrome, should listen to this episode.This podcast is evolving the more episodes I record.  Without a doubt it is becoming more and more apparent to me that I want to educate myself and others so that we can support our communities in the way they deserve.Inclusion is everything, and information is essential for empathy.Many thanks to Sinead for taking the time to increase my understanding of the reality of Down Syndrome and The Perfect Gift.  It was a complete pleasure to hear about the lovely Grace!

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